Navarta-Sánchez María Victoria, Senosiain García Juana M, Riverol Mario, Ursúa Sesma María Eugenia, Díaz de Cerio Ayesa Sara, Anaut Bravo Sagrario, Caparrós Civera Neus, Portillo Mari Carmen
Faculty of Nursing, University of Navarre, Navarre, Spain.
Department of Neurology, Clínica Universidad de Navarra, Navarre, Spain.
Qual Life Res. 2016 Aug;25(8):1959-68. doi: 10.1007/s11136-015-1220-3. Epub 2016 Jan 8.
The influence that social conditions and personal attitudes may have on the quality of life (QoL) of Parkinson's disease (PD) patients and informal caregivers does not receive enough attention in health care, as a result of it not being clearly identified, especially in informal caregivers. The aim of this study was to provide a comprehensive analysis of psychosocial adjustment and QoL determinants in PD patients and informal caregivers.
Ninety-one PD patients and 83 caregivers participated in the study. Multiple regression analyses were performed including benefit finding, coping, disease severity and socio-demographic factors, in order to determine how these aspects influence the psychosocial adjustment and QoL in PD patients and caregivers.
Regression models showed that severity of PD was the main predictor of psychosocial adjustment and QoL in patients. Nevertheless, multiple regression analyses also revealed that coping was a significant predictor of psychosocial adjustment in patients and caregivers. Furthermore, psychosocial adjustment was significantly related to QoL in patients and caregivers. Also, coping and benefit finding were predictors of QoL in caregivers but not in patients.
Multidisciplinary interventions aimed at improving PD patients' QoL may have more effective outcomes if education about coping skills, and how these can help towards a positive psychosocial adjustment to illness, were included, and targeted not only at patients, but also at informal caregivers.
社会状况和个人态度对帕金森病（PD）患者及非正式照料者生活质量（QoL）的影响在医疗保健中未得到足够关注，因为其未被明确识别，尤其是在非正式照料者中。本研究的目的是对PD患者及非正式照料者的心理社会适应和生活质量决定因素进行全面分析。
91名PD患者和83名照料者参与了本研究。进行了多元回归分析，包括益处发现、应对方式、疾病严重程度和社会人口学因素，以确定这些方面如何影响PD患者及照料者的心理社会适应和生活质量。
回归模型显示，PD的严重程度是患者心理社会适应和生活质量的主要预测因素。然而，多元回归分析还显示，应对方式是患者及照料者心理社会适应的重要预测因素。此外，心理社会适应与患者及照料者的生活质量显著相关。而且，应对方式和益处发现是照料者生活质量的预测因素，但不是患者的。
如果纳入关于应对技能以及这些技能如何有助于对疾病进行积极心理社会调适的教育，且不仅针对患者，还针对非正式照料者，那么旨在改善PD患者生活质量的多学科干预可能会产生更有效的结果。
