Juth Niklas
Senior lecturer and researcher in medical ethics the Stockholm Centre for Healthcare Ethics (CHE) at Karolinska Institutet.
J Law Med Ethics. 2014 Spring;42(1):38-52. doi: 10.1111/jlme.12117.
Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser extent than sometimes claimed.
当患者与其亲属之间存在潜在利益冲突时，获取和共享基因信息会引发两个问题。为了亲属，我们是否有责任去了解自己患疾病的基因易感性，或者我们是否有权保持不知情？我们是否有责任向亲属披露我们已知的患疾病的基因易感性？我认为这两个问题的答案都是肯定的，但程度比有时声称的要小。
