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美国一个满足癌症青年患者情感与支持性护理需求的创新网站。

An Innovative Website in the United States for Meeting the Emotional and Supportive Care Needs of Young Adults with Cancer.

作者信息

Fasciano Karen M, Souza Phoebe M, Braun Ilana, Trevino Kelly

机构信息

1 Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute , Boston, Massachusetts.

2 Department of Psychiatry, Brigham and Women's Hospital , Boston, Massachusetts.

出版信息

J Adolesc Young Adult Oncol. 2015 Mar;4(1):44-9. doi: 10.1089/jayao.2014.0035. Epub 2015 Feb 25.

Abstract

This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; and has social networking capacity. In a survey of website users, participants reported increased "connectedness" and variable impact on feelings of sadness, fear, and worry. Recommendations are made for fostering peer interactions, encouraging staff to educate website users around self-monitoring for distress, and incorporating relevant content on the website.

摘要

本文描述了一个特定机构网站的开发情况,该网站旨在满足美国18至39岁癌症青年患者的支持性和情感需求。该网站包含了青年患者特别感兴趣的主题信息、应对技能教育及资源,并且具备社交网络功能。在一项针对网站用户的调查中,参与者表示“联系感”增强,且对悲伤、恐惧和担忧情绪产生了不同程度的影响。文中针对促进同伴互动、鼓励工作人员围绕自我监测痛苦情绪对网站用户进行教育以及在网站上纳入相关内容提出了建议。

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