Walker Wendy, Sque Magi
Faculty of Education, Health and Wellbeing, Centre for Health and Social Care Improvement, University of Wolverhampton, Wolverhampton WV1 1DT, UK.
J Crit Care. 2016 Apr;32:73-8. doi: 10.1016/j.jcrc.2015.11.026. Epub 2015 Dec 9.
Concern for the grieving family can moderate the intentions of critical care staff to advocate deceased organ and tissue donation. Conversely, benevolent actions may provoke distress through missed opportunities to save or transform lives. This article provides insight into the perceived benefits of organ and tissue donation for grieving families who experienced end-of-life care in the intensive care unit.
Data were collected via semistructured, face-to-face or telephone interviews with 43 participants from 31 donor families. Audio recordings were transcribed verbatim and subjected to qualitative content analysis.
The study findings affirmed the importance of person-centered end-of-life care. Donor families shared examples of good-quality care and communication that contained the hallmarks of compassion, respect, dignity, and choice. We uncovered a trajectory of hope and despair in which the option of organ and tissue donation appeared to give meaning to the life and death of the deceased person and was comforting to some families in their bereavement.
Our study findings underlined the significance of donation decision making for grieving families. Organ and tissue donation has the potential to balance hope and despair at the end of life when the wishes of the dying, deceased, and bereaved are fulfilled.
对悲痛家庭的关怀可能会影响重症监护人员倡导已故者器官和组织捐赠的意愿。相反，善意的行为可能会因错失挽救或改变生命的机会而引发悲痛。本文深入探讨了器官和组织捐赠对在重症监护病房接受临终护理的悲痛家庭的潜在益处。
通过对来自31个捐赠家庭的43名参与者进行半结构化的面对面或电话访谈收集数据。对录音进行逐字转录，并进行定性内容分析。
研究结果证实了以患者为中心的临终护理的重要性。捐赠家庭分享了优质护理和沟通的例子，这些护理和沟通体现了同情、尊重、尊严和选择的特点。我们发现了一个希望与绝望的轨迹，在这个轨迹中，器官和组织捐赠的选择似乎赋予了逝者生死的意义，并在一些家庭悲痛之时给予了慰藉。
我们的研究结果强调了捐赠决策对悲痛家庭的重要性。当垂危者、逝者和遗属的意愿得到满足时，器官和组织捐赠有潜力在生命尽头平衡希望与绝望。
