妊娠期癫痫女性的支持系统：一项回顾性需求评估。
Support systems of women with epilepsy in pregnancy: A retrospective needs assessment.
作者信息
Qiang Judy K, Nyhof-Young Joyce, D'Souza Rohan, Bui Esther
机构信息
Faculty of Medicine, University of Toronto, 1 King's College Circle, Toronto, ON, Canada M5S 1A8.
Helliwell Medical Education Centre, Toronto General Hospital, 200 Elizabeth Street, Toronto, ON, Canada M5G 2C4.
出版信息
Seizure. 2016 Mar;36:1-3. doi: 10.1016/j.seizure.2015.12.017. Epub 2016 Jan 14.
PURPOSE
To explore support systems for women with epilepsy (WWE) during pregnancy.
METHODS
Audio-recorded, transcribed, semi-structured telephone interviews with WWE in pregnancy and following childbirth were coded using descriptive thematic analysis.
RESULTS
Twelve women with epilepsy aged 21-37 years who received care during pregnancy in our epilepsy clinic from 2010 to 2013 were interviewed. Women identified three areas of support: immediate family, their specialist and group support. Some women felt unable to fully share health concerns with family members, but appreciated their support. Neurologists were perceived as reliable sources of support and information, but could be inaccessible. Support groups were seen as beneficial, but may heighten women's fear of epilepsy-related adverse events during pregnancy.
CONCLUSION
This study highlights the use of support systems by WWE during pregnancy. The richness of the transcribed interviews provides valuable insight into the pregnancy-experience of WWE and helps to direct future clinical and research goals and hypotheses.
目的
探讨癫痫女性患者（WWE）孕期的支持系统。
方法
采用描述性主题分析法，对孕期及产后的癫痫女性患者进行录音、转录及半结构化电话访谈，并进行编码。
结果
对2010年至2013年期间在我们癫痫诊所接受孕期护理的12名年龄在21 - 37岁的癫痫女性患者进行了访谈。女性患者确定了三个支持领域：直系亲属、她们的专科医生和团体支持。一些女性觉得无法与家庭成员充分分享健康问题，但感激他们的支持。神经科医生被视为可靠的支持和信息来源，但可能难以联系到。支持小组被认为是有益的，但可能会加剧女性对孕期癫痫相关不良事件的恐惧。
结论
本研究强调了癫痫女性患者在孕期对支持系统的利用。转录访谈的丰富内容为深入了解癫痫女性患者的孕期经历提供了有价值的见解，并有助于指导未来的临床和研究目标及假设。
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