Safarabadi-Farahani Atefeh, Maarefvand Masoomeh, Biglarian Akbar, Khubchandani Jagdish
Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Substance Abuse and Dependence Research Center, Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran; Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
J Pediatr Nurs. 2016 Jul-Aug;31(4):e262-70. doi: 10.1016/j.pedn.2016.01.002. Epub 2016 Feb 6.
Cancer in children has a great impact on primary caregiver quality of life (QOL).
This study examined the effectiveness of a brief psychosocial intervention (BPI) on QOL of Primary Caregivers of Children with Cancer (PCCCs).
Sixty-five PCCCs participated in a randomized controlled trial in Mahak Hospital and Rehabilitation Complex in Tehran, Iran. A 5-week long BPI (which comprised of counseling sessions and telephone follow-up) was delivered to the intervention group in addition to usual service, while the control group was provided with usual service. Data were collected using the Caregiver Quality of Life Index-Cancer-Persian version (CQOLC-P) prior to intervention, post-intervention, and at follow-up (i.e. 30days after the intervention). Repeated measures analysis of variance analysis (ANOVA) was used to evaluate outcomes.
Majority of the participants were mothers (95%), between ages of 24-47 years (95%) with children between ages of 2-12 years. Most child cancer diagnoses were for brain tumors (n=31) and blood cancers (n=17). Significant improvement was found within the intervention group on QOL (p<0.001) including improvements on subscale measures of mental/emotional burden (p<0.001), disruption (p<0.001), and positive adaptation (p<0.001), compared with the control group over time. There was no difference between the intervention and control groups on the financial subscale measure after intervention (p>0.05).
BPI was an effective strategy to improve the quality of life of PCCCs. Similar interventions can be planned by practitioners to reduce the burden of childhood cancer on PCCCs.
儿童癌症对主要照顾者的生活质量（QOL）有很大影响。
本研究探讨了简短心理社会干预（BPI）对癌症患儿主要照顾者（PCCC）生活质量的有效性。
65名PCCC参与了在伊朗德黑兰的马哈克医院及康复中心进行的一项随机对照试验。除常规服务外，干预组接受了为期5周的BPI（包括咨询会议和电话随访），而对照组仅接受常规服务。在干预前、干预后及随访时（即干预后30天），使用照顾者生活质量指数-癌症-波斯语版（CQOLC-P）收集数据。采用重复测量方差分析（ANOVA）评估结果。
大多数参与者为母亲（95%），年龄在24 - 47岁之间（95%），孩子年龄在2 - 12岁之间。大多数儿童癌症诊断为脑肿瘤（n = 31）和血癌（n = 17）。与对照组相比，随着时间推移，干预组在生活质量方面有显著改善（p < 0.001），包括在心理/情感负担（p < 0.001）、干扰（p < 0.001）和积极适应（p < 0.001）等子量表测量方面的改善。干预后，干预组和对照组在财务子量表测量上没有差异（p > 0.05）。
BPI是提高PCCC生活质量的有效策略。从业者可规划类似干预措施，以减轻儿童癌症对PCCC的负担。
