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为女性及其家人提供的关于胎动减少的在线信息,在质量、可读性和可问责性方面参差不齐。

Online information for women and their families regarding reduced fetal movements is of variable quality, readability and accountability.

作者信息

Farrant Kimberley, Heazell Alexander E P

机构信息

St. Mary׳s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester M13 9WL, United Kingdom.

St. Mary׳s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester M13 9WL, United Kingdom; Institute of Human Development, Faculty of Medical and Human Sciences, University of Manchester, United Kingdom.

出版信息

Midwifery. 2016 Mar;34:72-78. doi: 10.1016/j.midw.2015.12.013. Epub 2016 Jan 14.

Abstract

OBJECTIVE

reduced fetal movements (RFM) are experienced by 46-50% of women prior to the diagnosis of stillbirth. Empowering women with evidenced-based information regarding RFM may allow for prompt contact with a health care provider and access to appropriate management. Use of the Internet is growing in popularity as a source of pregnancy information to aid mothers׳ decision-making. This study aimed to identify and examine the available online information for pregnant women regarding RFM.

DESIGN

a systematic search was performed using Google, Yahoo and Bing to identify the most popular websites giving information about RFM. The websites were assessed for readability, accountability and content using the Flesh-Kincaid ease of readability score; the Silberg criteria; and by comparison to evidence-based guidelines respectively. Chat forums were assessed using a qualitative thematic analysis.

FINDINGS

70 information articles and 63 chat forums were analysed from 77 unique websites. The mean readability score was 65.7 (suitable for the average 13-15 year old) and therefore above the recommended level set for health materials; only 15 (21.4%) websites met all accountability criteria; and 43 (70%) websites contained information that was not in accordance with evidence-based recommendations. Typical questions on forums were 'Is this normal? What should I do?' and responses were 'Better safe than sorry', 'There is no harm in calling'.

KEY CONCLUSION

overall, there was wide variation in the quality of information regarding RFM on the Internet. However, the study identified four excellent websites on RFM that may be suitable sources of information for women. Women׳s uncertainty displayed in the chat forums may suggest that clearer, accessible guidance is needed if they experience RFM.

IMPLICATIONS FOR PRACTICE

the Internet can compliment and support current methods of antenatal information provision. However, due to varying levels of quality it is essential that professionals discuss and direct women to useful evidenced-based websites. Care must be taken to ensure consistent advice and management of those presenting with RFM and that women׳s concerns are addressed.

摘要

目的

46% - 50%的女性在死产诊断前会经历胎动减少(RFM)。为女性提供基于证据的有关胎动减少的信息,可能会促使她们及时联系医疗保健人员并获得适当的处理。作为帮助母亲做决策的妊娠信息来源,互联网的使用日益普遍。本研究旨在识别和审查互联网上可供孕妇获取的有关胎动减少的信息。

设计

使用谷歌、雅虎和必应进行系统搜索,以识别提供有关胎动减少信息的最热门网站。分别使用弗莱什 - 金凯德易读性评分、西尔伯格标准并与基于证据的指南进行比较,对这些网站的可读性、可靠性和内容进行评估。使用定性主题分析对聊天论坛进行评估。

结果

从77个独特网站分析了70篇信息文章和63个聊天论坛。平均易读性得分为65.7(适合普通13 - 15岁青少年),因此高于健康材料推荐水平;只有15个(21.4%)网站符合所有可靠性标准;43个(70%)网站包含不符合基于证据的建议的信息。论坛上的典型问题是“这正常吗?我该怎么办?”,回答有“宁可谨慎无大错”“打电话没坏处”。

主要结论

总体而言,互联网上有关胎动减少的信息质量差异很大。然而,该研究识别出四个关于胎动减少的优秀网站,可能是女性合适的信息来源。聊天论坛中女性表现出的不确定性可能表明,如果她们经历胎动减少,需要更清晰、易获取的指导。

对实践的启示

互联网可以补充和支持当前的产前信息提供方式。然而,由于质量参差不齐,专业人员必须讨论并引导女性访问有用的基于证据的网站。必须注意确保对出现胎动减少情况的女性提供一致的建议和处理,并解决她们的担忧。

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