增强健康领域的自我决定权：针对智障青少年的一项基于学校干预措施“询问项目”的随机对照试验结果
Enhancing Self-Determination in Health: Results of an RCT of the Ask Project, a School-Based Intervention for Adolescents with Intellectual Disability.
作者信息
McPherson Lyn, Ware Robert S, Carrington Suzanne, Lennox Nicholas
机构信息
Queensland Centre for Intellectual and Developmental Disability, Mater Research Institute-UQ, The University of Queensland, South Brisbane, Qld, Australia.
UQ, Child Health Research Centre, The University of Queensland, South Brisbane, Qld, Australia.
出版信息
J Appl Res Intellect Disabil. 2017 Mar;30(2):360-370. doi: 10.1111/jar.12247. Epub 2016 Feb 12.
BACKGROUND
Adolescents with intellectual disability have high levels of unrecognized disease and inadequate health screening/promotion which might be addressed by improving health advocacy skills.
METHODS
A parallel-group cluster randomized controlled trial was conducted to investigate whether a health intervention package, consisting of classroom-based health education, a hand-held health record and a health check, increased carer-reported health advocacy in adolescents with intellectual disabilities.
RESULTS
Carers of 388 adolescents responded. Adolescents allocated to receive the health intervention package were significantly more likely to go to the doctor on their own, ask questions and explain their health problems to the doctor without help. Carers reported their adolescent had benefited, gaining increased knowledge and responsibility for their own health. They themselves reported an increase in knowledge and better ability to support the young person.
CONCLUSIONS
An educational initiative based on the Ask Health Diary led to improved healthcare autonomy for adolescents with intellectual disabilities.
背景
智障青少年存在大量未被识别的疾病，且健康筛查/促进措施不足，而提高健康宣传技能或许能解决这些问题。
方法
开展了一项平行组整群随机对照试验，以调查由课堂健康教育、手持式健康记录和健康检查组成的健康干预套餐，是否能提高智障青少年的照料者报告的健康宣传水平。
结果
388名青少年的照料者做出了回应。被分配接受健康干预套餐的青少年更有可能独自去看医生、提问并在无人帮助的情况下向医生解释自己的健康问题。照料者报告称他们的青少年受益了，对自身健康的了解和责任感有所增强。他们自己也报告称知识有所增加，支持年轻人的能力有所提高。
结论
基于“询问健康日记”的教育举措改善了智障青少年的医疗自主权。
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