Lee Suk-Hyang, Kang Ha-Nul, Kim Soyeon
Department of Special Education, Ewha Womans University, Seoul, Republic of Korea.
Department of Special Education, The Graduate School of Ewha Womans University, Seoul, Republic of Korea.
Front Psychiatry. 2023 Oct 24;14:1273324. doi: 10.3389/fpsyt.2023.1273324. eCollection 2023.
Despite the importance of health as a significant indicator of quality of life, individuals with intellectual and developmental disabilities (IDD) often face low expectations, stigma, and insufficient opportunities in health care and education. In response, we developed a health self-advocacy program with a school-home connection for students with IDD to promote self-directed health care and verified its effectiveness by implementing the program for students with IDD.
This study aimed to explore participants' program experiences and support needs to reduce the stigma surrounding individuals with IDD and provide implications for enhancing health self-advocacy skills.
Individual and focus group interviews were conducted with 14 students, six parents, and four teachers who participated in the program. The collected data were analyzed using the constant comparative method.
The following five main themes emerged: (a) the gap between perception and practice in health care; (b) advantages and influencing factors of the program; (c) challenges in program implementation; (d) outcomes of program implementation; and (e) support needs for promoting health self-advocacy.
Based on these findings, implications are provided and discussed to reduce the stigma surrounding individuals with IDD and enhance health self-advocacy.
尽管健康作为生活质量的重要指标具有重要意义，但智力和发育障碍（IDD）患者在医疗保健和教育方面往往面临期望较低、耻辱感以及机会不足的问题。作为回应，我们为IDD学生开发了一个家校联系的健康自我倡导项目，以促进自主医疗保健，并通过对IDD学生实施该项目验证了其有效性。
本研究旨在探索参与者的项目体验和支持需求，以减少围绕IDD患者的耻辱感，并为提高健康自我倡导技能提供启示。
对参与该项目的14名学生、6名家长和4名教师进行了个人访谈和焦点小组访谈。使用持续比较法对收集到的数据进行分析。
出现了以下五个主要主题：（a）医疗保健中认知与实践的差距；（b）项目的优势和影响因素；（c）项目实施中的挑战；（d）项目实施的结果；（e）促进健康自我倡导的支持需求。
基于这些发现，提出并讨论了相关启示，以减少围绕IDD患者的耻辱感并增强健康自我倡导。
