Hessler Danielle, Fisher Lawrence, Polonsky William, Johnson Nicole
Department of Family and Community Medicine, UCSF.
Behavioral Diabetes Institute, University of California, and.
J Pediatr Psychol. 2016 Aug;41(7):750-8. doi: 10.1093/jpepsy/jsw002. Epub 2016 Feb 10.
To identify the unique areas of diabetes-related distress (DD) for parents of teens with type 1 diabetes and parent and teen characteristics associated with DD.
Areas of DD were developed from structured interviews and translated into 46 survey items. Items were analyzed with exploratory factor analysis (EFA).
An EFA with 332 parents (88% mothers) reduced items to four Parent Diabetes Distress Scale (PDDS) factors (20 items, α = .94): Personal, Teen Management, Parent/Teen Relationship, and Healthcare Team Distress. Parent DD was higher among fathers, younger or single parents, parents of teens with higher hemoglobin A1c or severe low blood glucose levels, authoritarian parenting, depressive symptoms, and low emotional support.
4 areas of parent DD were identified using a newly developed measure, the PDDS. DD was associated with family demographic, teen diabetes status, and parent contextual factors, and can help identify parents who may be more vulnerable to DD.
确定1型糖尿病青少年家长与糖尿病相关困扰（DD）的独特领域以及与DD相关的家长和青少年特征。
通过结构化访谈确定DD领域，并将其转化为46个调查项目。采用探索性因素分析（EFA）对项目进行分析。
对332名家长（88%为母亲）进行的EFA将项目减少为四个家长糖尿病困扰量表（PDDS）因素（20个项目，α = 0.94）：个人、青少年管理、家长/青少年关系和医疗团队困扰。在父亲、年龄较小或单身的家长、血红蛋白A1c水平较高或严重低血糖水平的青少年的家长、专制型育儿方式、抑郁症状以及情感支持较低的家长中，家长DD水平较高。
使用新开发的测量工具PDDS确定了家长DD的4个领域。DD与家庭人口统计学、青少年糖尿病状况和家长背景因素相关，有助于识别可能更容易受到DD影响的家长。
