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居住在俄克拉荷马州的美国印第安人的癌症经历。

The Experience of Cancer in American Indians Living in Oklahoma.

作者信息

Craft Melissa, Patchell Beverly, Friedman Jack, Stephens Lancer, Dwyer Kathy

机构信息

1 University of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.

2 University of Utah, Salt Lake City, UT, USA.

出版信息

J Transcult Nurs. 2017 May;28(3):259-268. doi: 10.1177/1043659616634169. Epub 2016 Feb 28.

DOI:10.1177/1043659616634169
PMID:26929307
Abstract

Many cancers in American Indians (AIs) are not diagnosed early leading to effects on physical, social, and emotional well-being or quality of life (QOL). Little research has been done on QOL of AIs in Oklahoma. This study examined the experience of living with cancer of AIs in Oklahoma to gain greater understanding of QOL issues and provide a basis for interventions to improve QOL. Twenty AIs diagnosed with cancer and receiving care in Oklahoma participated in this pilot study through semistructured interviews. Data were analyzed using thematic analysis. Themes identified included circles of support, finding meaning in the experience, and facing personal challenges such as health care-related issues, including mental health needs and fragmented care. The findings from this pilot study provide insights into the cancer experience of AIs in Oklahoma and demonstrate that care navigation and social support are important aspects to address in intervention development.

摘要

美国印第安人(AI)的许多癌症未能得到早期诊断,这对他们的身体、社会和情感健康或生活质量(QOL)产生了影响。针对俄克拉荷马州美国印第安人的生活质量,相关研究甚少。本研究调查了俄克拉荷马州美国印第安人患癌后的生活经历,以更深入了解生活质量问题,并为改善生活质量的干预措施提供依据。20名在俄克拉荷马州被诊断患有癌症并正在接受治疗的美国印第安人通过半结构化访谈参与了这项试点研究。采用主题分析法对数据进行了分析。确定的主题包括支持圈子、从经历中寻找意义,以及面对个人挑战,如与医疗保健相关的问题,包括心理健康需求和医疗服务碎片化。这项试点研究的结果为了解俄克拉荷马州美国印第安人的癌症经历提供了见解,并表明护理导航和社会支持是干预措施制定中需要解决的重要方面。

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