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Research to advance health and health care for individuals with sickle cell disease: a drop in the bucket of needed research.

作者信息

Wilkie Diana J

机构信息

Center of Excellence in Palliative Care Research, Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, Gainesville, Florida, USA.

出版信息

J Adv Nurs. 2016 Jun;72(6):1396-7. doi: 10.1111/jan.12972. Epub 2016 Apr 8.

DOI:10.1111/jan.12972
PMID:27062162
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4860129/
Abstract
摘要

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本文引用的文献

1
A randomized controlled pilot study feasibility of a tablet-based guided audio-visual relaxation intervention for reducing stress and pain in adults with sickle cell disease.一项关于基于平板电脑的引导式视听放松干预对镰状细胞病成人患者减轻压力和疼痛的随机对照试验可行性研究。
J Adv Nurs. 2016 Jun;72(6):1452-63. doi: 10.1111/jan.12895. Epub 2016 Jan 15.
2
Barriers to care and quality of primary care services in children with sickle cell disease.镰状细胞病患儿的医疗保健障碍及初级保健服务质量
J Adv Nurs. 2016 Jun;72(6):1417-29. doi: 10.1111/jan.12756. Epub 2015 Sep 15.
3
Perceptions of young adults with sickle cell disease concerning their disease experience.镰状细胞病青年患者对其疾病经历的认知
J Adv Nurs. 2016 Jun;72(6):1441-51. doi: 10.1111/jan.12760. Epub 2015 Sep 9.
4
Adults with sickle cell disease may perform cognitive tests as well as controls when processing speed is taken into account: a preliminary case-control study.考虑处理速度时，镰状细胞病成人在认知测试中的表现可能与对照组相当：一项初步病例对照研究。
J Adv Nurs. 2016 Jun;72(6):1409-16. doi: 10.1111/jan.12755. Epub 2015 Aug 20.
5
Perception of young adults with sickle cell disease or sickle cell trait about participation in the CHOICES randomized controlled trial.患有镰状细胞病或镰状细胞特征的年轻人对参与“选择”随机对照试验的看法。
J Adv Nurs. 2016 Jun;72(6):1430-40. doi: 10.1111/jan.12702. Epub 2015 Jun 15.
6
Satisfied or not satisfied: pain experiences of patients with sickle cell disease.满意或不满意：镰状细胞病患者的疼痛体验
J Adv Nurs. 2016 Jun;72(6):1398-408. doi: 10.1111/jan.12678. Epub 2015 Apr 27.
7
The burden of emergency department use for sickle-cell disease: an analysis of the national emergency department sample database.急诊科使用负担：镰状细胞病的分析——全国急诊科抽样数据库研究。
Am J Hematol. 2010 Oct;85(10):797-9. doi: 10.1002/ajh.21807.
8
Sickle cell disease: a question of equity and quality.镰状细胞病：公平与质量问题。
Pediatrics. 2006 May;117(5):1763-70. doi: 10.1542/peds.2005-1611.