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“不止于吹泡泡”:父母对治疗自闭症谱系障碍儿童的治疗师的期望。

"More than blowing bubbles": What parents want from therapists working with children with autism spectrum disorder.

作者信息

Edwards Amelia, Brebner Chris, Mccormack Paul F, Macdougall Colin

机构信息

a Speech Pathology , Flinders University of South Australia , Adelaide , Australia and.

b Discipline of Public Health , Flinders University of South Australia , Adelaide , Australia.

出版信息

Int J Speech Lang Pathol. 2016 Oct;18(5):493-505. doi: 10.3109/17549507.2015.1112835. Epub 2016 Apr 4.

Abstract

PURPOSE

Providing therapy to children with autism spectrum disorder (ASD) often requires therapists to work closely with both the child with ASD and their family. Although there is evidence outlining best practice for therapists when working with families of children with disabilities, few studies have examined the parental perspective. This study investigated the qualities parents seek in therapists who work with their children with ASD.

METHOD

Semi-structured interviews were conducted with 14 parents of children with ASD. Thematic analysis was undertaken to analyse the data, with emergence of two core themes; Partnership and Effective Therapy.

RESULT

The parents of children with ASD interviewed for this study valued both working in partnership with therapists and therapists delivering effective therapy. Parents ultimately wanted therapists to produce positive outcomes for their children and were willing to sacrifice other desired qualities, as long as the therapy program was effective.

CONCLUSION

While parents of children with ASD identified a range of qualities that they want in therapists, a therapist being able to produce positive outcomes for their child was considered most important. The implications of these findings are discussed both in terms of clinical implications for therapists and directions for future research.

摘要

目的

为自闭症谱系障碍(ASD)儿童提供治疗通常需要治疗师与患有ASD的儿童及其家庭密切合作。尽管有证据概述了治疗师在与残疾儿童家庭合作时的最佳做法,但很少有研究探讨家长的观点。本研究调查了家长在为患有ASD的孩子治疗的治疗师身上所寻求的品质。

方法

对14位患有ASD儿童的家长进行了半结构化访谈。采用主题分析法对数据进行分析,出现了两个核心主题:合作关系和有效治疗。

结果

参与本研究访谈的患有ASD儿童的家长重视与治疗师建立合作关系以及治疗师提供有效治疗。家长最终希望治疗师能为他们的孩子带来积极的结果,并且只要治疗方案有效,他们愿意牺牲其他期望的品质。

结论

虽然患有ASD儿童的家长确定了他们希望治疗师具备的一系列品质,但治疗师能够为他们的孩子带来积极结果被认为是最重要的。这些发现的意义从对治疗师的临床意义和未来研究方向两方面进行了讨论。

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