Kaye Alison, Lybrand Sandra
a Pediatric Plastic and Cleft Surgery , Children's Mercy Hospital , Kansas City , Missouri , USA.
b Department of Social Work , Children's Mercy Hospital , Kansas City , Missouri , USA.
Soc Work Health Care. 2016 Apr;55(4):280-95. doi: 10.1080/00981389.2016.1145168. Epub 2016 Apr 13.
The birth of a child with significant medical problems poses challenges for most families. Congenital orofacial clefting is a common condition affecting families worldwide. Orofacial clefting requires long-term medical care and can affect multiple body systems. Having a child with a chronic medical condition such as cleft lip or palate creates many psychosocial ramifications for a family. This article describes the importance of medical social work involvement in the coordinated care for children with cleft lip and palate. Specific cases spanning prenatal care through adolescence are used to highlight the variety of complex psychosocial situations encountered in the multidisciplinary cleft team setting.
孩子患有严重的医疗问题,这对大多数家庭来说都是挑战。先天性口面部裂是一种影响全球家庭的常见病症。口面部裂需要长期医疗护理,且会影响多个身体系统。孩子患有唇腭裂等慢性疾病会给家庭带来诸多心理社会方面的影响。本文阐述了医疗社会工作介入唇腭裂患儿协调护理工作的重要性。文中列举了从产前护理到青春期的具体案例,以突出在多学科腭裂治疗团队环境中遇到的各种复杂心理社会状况。