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欧洲类风湿关节炎患者的护理标准:由专业组织DGRh和VRA的国家特别工作组在“德国风湿病联盟”支持下对eumusc.net推荐意见进行的翻译及评论,该推荐意见由欧洲抗风湿病联盟(EULAR)提供支持

[Standards of care for people with rheumatoid arthritis in Europe : Translation and comments of the eumusc.net recommendations supported by EULAR performed by a national task force of the professional organisations DGRh and VRA supported by "Deutsche Rheumaliga"].

作者信息

Braun J, Krause A, Aringer M, Burmester G, Bessler F, Engel J-M, Faubel U, Fischer-Betz R, Genth E, Gromnica-Ihle E, Hellmich B, Kötter I, Krüger K, Lakomek J, Lorenz H-M, Manger B, Märker-Hermann E, Minden K, Müller-Ladner U, Rautenstrauch J, Rehart S, Riemekasten G, Rudwaleit M, Rüther W, Schett G, Schuch F, Schulze-Koops H, Specker C, Wassenberg S, Wiek D, Zink A, Schneider M

机构信息

Rheumazentrum Ruhrgebiet, Claudiusstr. 45, 44649, Herne, Deutschland.

Immanuel-Krankenhaus Berlin, Berlin, Deutschland.

出版信息

Z Rheumatol. 2016 May;75(4):416-28. doi: 10.1007/s00393-016-0059-5.

Abstract

In a joint initiative by the boards of the German Society for Rheumatology (DGRh) and the Association of Rheumatology Clinics (VRA) the European "standards of care" for rheumatoid arthritis, recently suggested by the European Musculoskeletal Conditions Surveillance and Information Network (eumusc.net) and supported by the European League Against Rheumatism (EULAR), were translated and annotated. The recommendations include aspects of the management of the disease, actual medical care, and access to information - this includes all types of support people with RA need, and, last but not least communication of the necessary knowledge. Furthermore, health care structures such as the availability of medical staff with relevant expertise are also important.

摘要

德国风湿病学会(DGRh)董事会与风湿病诊所协会(VRA)联合发起了一项倡议,对欧洲肌肉骨骼疾病监测与信息网络(eumusc.net)近期提出并得到欧洲抗风湿病联盟(EULAR)支持的类风湿关节炎欧洲“护理标准”进行了翻译和注释。这些建议涵盖了疾病管理、实际医疗护理以及信息获取等方面——这包括类风湿关节炎患者所需的各类支持,而且,至关重要的是还包括必要知识的传播。此外,诸如具备相关专业知识的医务人员的可获得性等医疗保健结构也很重要。

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