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儿童权利与临床生物伦理学:对现代医学与伦理学的历史反思

Child Rights and Clinical Bioethics: Historical Reflections on Modern Medicine and Ethics.

作者信息

Brosco Jeffrey P

出版信息

Perspect Biol Med. 2016;58(3):356-64. doi: 10.1353/pbm.2016.0003.

DOI:10.1353/pbm.2016.0003
PMID:27157355
Abstract

Why might pediatric bioethicists in the United States reject the U.N. Convention on the Rights of the Child (CRC) as a framework for resolving ethical issues? The essays in this issue present arguments and counterarguments regarding the usefulness of the CRC in various clinical and research cases. But underlying this debate are two historical factors that help explain the seeming paradox of pediatric bioethicists' arguing against child's rights. First, the profession of clinical bioethics emerged in the 1970s as one component of modern medicine's focus on improving health through the application of technologically sophisticated treatments. The everyday work of U.S. bioethicists thus usually involves emerging technologies or practices in clinical or laboratory settings; the articles of the CRC, in contrast, seem better suited to addressing broad policy issues that affect the social determinants of health. Second, U.S. child health policy veered away from a more communitarian approach in the early 20th century for reasons of demography that were reinforced by ideology and concerns about immigration. The divide between clinical medicine and public health in the United States, as well as the relatively meager social safety net, are not based on a failure to recognize the rights of children. Indeed, there is some historical evidence to suggest that "rights language" has hindered progress on child health and well-being in the United States. In today's political climate, efforts to ensure that governments pledge to treat children in accordance with their status as human beings (a child right's perspective) are less likely to improve child health than robust advocacy on behalf of children's unique needs, especially as novel models of health-care financing emerge.

摘要

为什么美国的儿科生物伦理学家可能会拒绝将《联合国儿童权利公约》(CRC)作为解决伦理问题的框架呢?本期的这些文章呈现了关于CRC在各种临床和研究案例中的实用性的正反两方面观点。但在这场辩论的背后有两个历史因素,有助于解释儿科生物伦理学家反对儿童权利这一看似矛盾的现象。首先,临床生物伦理学专业在20世纪70年代出现,是现代医学通过应用技术复杂的治疗方法来改善健康这一关注点的一个组成部分。因此,美国生物伦理学家的日常工作通常涉及临床或实验室环境中的新兴技术或实践;相比之下,CRC的条款似乎更适合解决影响健康的社会决定因素的广泛政策问题。其次,由于人口统计学原因,美国儿童健康政策在20世纪初背离了更具社群主义的方法,这种原因又因意识形态以及对移民的担忧而得到强化。美国临床医学与公共卫生之间的分歧,以及相对薄弱的社会安全网,并非基于对儿童权利的忽视。事实上,有一些历史证据表明,“权利语言”在美国阻碍了儿童健康和福祉方面的进步。在当今的政治环境下,努力确保政府承诺根据儿童作为人的地位来对待他们(儿童权利视角),比起代表儿童独特需求进行有力倡导,尤其是随着新型医疗保健融资模式的出现,更不太可能改善儿童健康状况。

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