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直接面向消费者的皮肤病远程医疗网站和应用的选择、透明度、协调性和质量。

Choice, Transparency, Coordination, and Quality Among Direct-to-Consumer Telemedicine Websites and Apps Treating Skin Disease.

机构信息

Department of Dermatology, and Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco School of Medicine, San Francisco.

University of California, San Francisco School of Medicine, San Francisco.

出版信息

JAMA Dermatol. 2016 Jul 1;152(7):768-75. doi: 10.1001/jamadermatol.2016.1774.

Abstract

IMPORTANCE

Evidence supports use of teleconsultation for improving patient access to dermatology. However, little is known about the quality of rapidly expanding direct-to-consumer (DTC) telemedicine websites and smartphone apps diagnosing and treating skin disease.

OBJECTIVE

To assess the performance of DTC teledermatology services.

DESIGN AND PARTICIPANTS

Simulated patients submitted a series of structured dermatologic cases with photographs, including neoplastic, inflammatory, and infectious conditions, using regional and national DTC telemedicine websites and smartphone apps offering services to California residents.

MAIN OUTCOMES AND MEASURES

Choice of clinician, transparency of credentials, clinician location, demographic and medical data requested, diagnoses given, treatments recommended or prescribed, adverse effects discussed, care coordination.

RESULTS

We received responses for 62 clinical encounters from 16 DTC telemedicine websites from February 4 to March 11, 2016. None asked for identification or raised concerns about pseudonym use or falsified photographs. During most encounters (42 [68%]), patients were assigned a clinician without any choice. Only 16 (26%) disclosed information about clinician licensure, and some used internationally based physicians without California licenses. Few collected the name of an existing primary care physician (14 [23%]) or offered to send records (6 [10%]). A diagnosis or likely diagnosis was proffered in 48 encounters (77%). Prescription medications were ordered in 31 of 48 diagnosed cases (65%), and relevant adverse effects or pregnancy risks were disclosed in a minority (10 of 31 [32%] and 6 of 14 [43%], respectively). Websites made several correct diagnoses in clinical scenarios where photographs alone were adequate, but when basic additional history elements (eg, fever, hypertrichosis, oligomenorrhea) were important, they regularly failed to ask simple relevant questions and diagnostic performance was poor. Major diagnoses were repeatedly missed, including secondary syphilis, eczema herpeticum, gram-negative folliculitis, and polycystic ovarian syndrome. Regardless of the diagnoses given, treatments prescribed were sometimes at odds with existing guidelines.

CONCLUSIONS AND RELEVANCE

Telemedicine has potential to expand access to high-value health care. Our findings, however, raise concerns about the quality of skin disease diagnosis and treatment provided by many DTC telemedicine websites. Ongoing expansion of health plan coverage of these services may be premature. Until improvements are made, patients risk using health care services that lack transparency, choice, thoroughness, diagnostic and therapeutic quality, and care coordination. We offer several suggestions to improve the quality of DTC telemedicine websites and apps and avoid further growth of fragmented, low-quality care.

摘要

重要性

有证据表明,远程咨询可改善患者获得皮肤科服务的机会。然而,对于迅速扩张的直接面向消费者(DTC)远程医疗网站和智能手机应用程序在诊断和治疗皮肤疾病方面的质量,我们知之甚少。

目的

评估 DTC 远程皮肤病学服务的性能。

设计和参与者

模拟患者使用区域和全国性的 DTC 远程医疗网站和智能手机应用程序,向加利福尼亚州居民提供服务,提交了一系列带有照片的结构化皮肤科病例,包括肿瘤、炎症和感染性疾病。

主要结果和措施

临床医生的选择、资质透明度、临床医生的位置、要求的人口统计学和医疗数据、给出的诊断、推荐或规定的治疗、讨论的不良反应、护理协调。

结果

我们于 2016 年 2 月 4 日至 3 月 11 日期间收到了来自 16 个 DTC 远程医疗网站的 62 次临床就诊的回复。没有一个网站要求患者提供身份证明,也没有一个网站对匿名使用或伪造照片表示担忧。在大多数情况下(42 [68%]),患者没有选择临床医生就被分配了一名临床医生。只有 16 个(26%)网站披露了医生的执照信息,而有些网站使用的是没有加州执照的国际医生。很少有网站收集到现有的初级保健医生的姓名(14 [23%])或提供发送记录的服务(6 [10%])。48 次就诊中有 48 次(77%)提供了诊断或可能的诊断。在诊断为 48 例病例中,有 31 例(65%)开具了处方药物,少数(10 例[32%]和 6 例[43%])披露了相关的不良反应或妊娠风险。网站在仅使用照片就足以做出正确诊断的临床情况下做出了几个正确的诊断,但当基本的附加病史元素(例如发热、多毛症、月经稀少)很重要时,它们经常没有询问简单的相关问题,诊断性能很差。包括二期梅毒、疱疹样湿疹、革兰阴性滤泡炎和多囊卵巢综合征在内的主要诊断被多次遗漏。无论给出何种诊断,开出的治疗方法有时都与现有指南不一致。

结论和相关性

远程医疗有可能扩大获得高价值医疗服务的机会。然而,我们的发现令人担忧的是,许多 DTC 远程医疗网站在皮肤病诊断和治疗方面的质量。医疗保险计划对这些服务的覆盖范围不断扩大可能为时过早。在得到改善之前,患者可能会使用缺乏透明度、选择、全面性、诊断和治疗质量以及护理协调的医疗服务。我们提出了一些建议,以提高 DTC 远程医疗网站和应用程序的质量,并避免进一步发展分散的、低质量的护理。

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