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医疗护理对系统性红斑狼疮女性患者生活质量(世界卫生组织生活质量量表-100)的影响。

Influence of medical care in the quality of life (WHOQOL-100) of women living with systemic lupus erythematosus.

作者信息

da Silva Juliana Passos, Amadei Janete Lane

机构信息

Centro Universitário de Maringá (UniCesumar), Maringá, PR, Brazil.

Centro Universitário de Maringá (UniCesumar), Maringá, PR, Brazil.

出版信息

Rev Bras Reumatol Engl Ed. 2016 May-Jun;56(3):198-205. doi: 10.1016/j.rbre.2015.08.017. Epub 2015 Sep 11.

Abstract

UNLABELLED

Lupus requires careful treatment by medical specialists. This study aimed to evaluate the quality of life of patients living with Systemic Lupus Erythematosus (SLE). The method approached women with a confirmed diagnosis of SLE under medical supervision in a University hospital outpatient clinic or in a private clinic. We used an instrument containing relevant information of the patient and also the Portuguese version of the World Health Organization Quality of Life Group (WHOQOL-100) questionnaire. The study population consisted of 39 women, married in their majority (56.4%); prevalently aged 37-60 years old; prevalence of diagnosis time over five years (66.7%); and in use of less than 5 medications (69.2%). 92.3% had the disease inactive with higher means in mobility (p=0.0463) and quality of life (p=0.0199) facets; on the other hand, the physical safety and security facet (p=0.0093) showed higher mean for people with active disease. Health and social care analysis showed availability and quality (p=0.0434), even when with other associated diseases (33.3%); and the highest means were Dependence on medicinal substances and medical aids (p=0.0143). The negative results for associated diseases were higher in sexual activity (p=0.0431) and transportation (p=0.0319) facets.

IN CONCLUSION

if women living with SLE receive continuous medical attention, they will enjoy good quality of life, while minimizing the complications inherent in this condition.

摘要

未标注

狼疮需要医学专家进行精心治疗。本研究旨在评估系统性红斑狼疮(SLE)患者的生活质量。该方法针对在大学医院门诊或私人诊所接受医学监督的确诊为SLE的女性。我们使用了一种包含患者相关信息以及世界卫生组织生活质量组(WHOQOL - 100)问卷葡萄牙语版本的工具。研究人群包括39名女性,大多数已婚(56.4%);主要年龄在37 - 60岁;诊断时间超过五年的患病率为(66.7%);使用少于5种药物的患病率为(69.2%)。92.3%的患者病情处于非活动期,在活动能力(p = 0.0463)和生活质量(p = 0.0199)方面得分较高;另一方面,身体安全和保障方面(p = 0.0093)在疾病活动期患者中得分较高。健康和社会护理分析显示其可用性和质量(p = 0.0434),即使伴有其他相关疾病(33.3%);且最高得分出现在对药物和医疗辅助工具的依赖方面(p = 0.0143)。相关疾病在性活动(p = 0.0431)和交通(p = 0.0319)方面的负面结果较高。

结论

如果SLE女性患者持续接受医疗护理,她们将享有良好的生活质量,同时将这种疾病固有的并发症降至最低。

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