Løvschal-Nielsen P, Clausen N, Meinert L
Department of Anthropology, Aarhus University, Aarhus, Denmark.
Department of Pediatrics, University Hospital of Aarhus at Skejby, Aarhus, Denmark.
Eur J Cancer Care (Engl). 2017 Nov;26(6). doi: 10.1111/ecc.12519. Epub 2016 Jun 10.
This anthropological study explores children's non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children's non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 months of ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children's response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment, configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.
这项人类学研究探讨了丹麦一家大学医院儿科肿瘤病房中儿童在积极治疗期（即治疗期间）的非社交反应。研究认为，尽管一些儿童的非社交反应是为应对治疗状况而采取的一种策略性脱离，但这种非社交策略最终可能被证明是一种不良策略，会给社会生存带来负面的长期社会后果。数据来自2011年5月至2013年1月为期7个月的人种志田野调查，采用了参与观察和开放式访谈等定性方法。4至15岁的50名男女儿童、他们的家人以及医院工作人员参与了这项研究。这些数据构成了该研究的基础。研究结果表明，儿童对护理挑战的反应，包括护理管理带来的疲惫、身处公共场所的暴露感以及治疗的无期限，以我们称之为社会脱离的策略形式表现出来。研究表明，这种策略性社会脱离可能会演变成长期的社会模式，因此，对于童年癌症幸存者来说，它会从一种缓解策略转变为一种社会孤立和有害的策略。
