Tamminga Sietske J, van Hezel Sanne, de Boer Angela Gem, Frings-Dresen Monique Hw
Coronel Institute of Occupational Health, Academic Medical Center, Amsterdam, Netherlands.
JMIR Res Protoc. 2016 Jun 10;5(2):e118. doi: 10.2196/resprot.5565.
It is important to enhance the return to work of cancer survivors with an appropriate intervention, as cancer survivors experience problems upon their return to work but consider it an essential part of their recovery.
The objective of our study was to develop an eHealth intervention to enhance the return to work of cancer survivors and to test the feasibility of the eHealth intervention with end users.
To develop the intervention we 1) searched the literature, 2) interviewed 7 eHealth experts, 3) interviewed 7 cancer survivors, 2 employers, and 7 occupational physicians, and 4) consulted experts. To test feasibility, we enrolled 39 cancer survivors, 9 supervisors, 7 occupational physicians, 9 general physicians and 2 social workers and gave them access to the eHealth intervention. We also interviewed participants, asked them to fill in a questionnaire, or both, to test which functionalities of the eHealth intervention were appropriate and which aspects needed improvement.
Cancer survivors particularly want information and support regarding the possibility of returning to work, and on financial and legal aspects of their situation. Furthermore, the use of blended care and the personalization of the eHealth intervention were preferred features for increasing compliance. The first version of the eHealth intervention consisted of access to a personal and secure website containing various functionalities for cancer survivors blended with support from their specialized nurse, and a public website for employers, occupational physicians, and general physicians. The eHealth intervention appeared feasible. We adapted it slightly by adding more information on different cancer types and their possible effects on return to work.
A multistakeholder and mixed-method design appeared useful in the development of the eHealth intervention. It was challenging to meet all end user requirements due to legal and privacy constraints. The eHealth intervention appeared feasible, although implementation in daily practice needs to be subject of further research.
Dutch Trial Register number (NTR): 5190; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=5190 (Archived by WebCite at http://www.webcitation.org/6hm4WQJqC).
通过适当干预提高癌症幸存者的重返工作率很重要,因为癌症幸存者在重返工作时会遇到问题,但他们认为这是康复的重要组成部分。
我们研究的目的是开发一种电子健康干预措施,以提高癌症幸存者的重返工作率,并与最终用户测试该电子健康干预措施的可行性。
为了开发该干预措施,我们1)检索文献,2)采访7位电子健康专家,3)采访7位癌症幸存者、2位雇主和7位职业医师,4)咨询专家。为了测试可行性,我们招募了39位癌症幸存者、9位主管、7位职业医师、9位普通医师和2位社会工作者,并让他们使用该电子健康干预措施。我们还采访了参与者,要求他们填写问卷,或两者兼而有之,以测试电子健康干预措施的哪些功能合适以及哪些方面需要改进。
癌症幸存者特别希望获得有关重返工作可能性以及自身情况的财务和法律方面的信息和支持。此外,使用混合式护理和电子健康干预措施的个性化是提高依从性的首选功能。电子健康干预措施的第一版包括访问一个个人安全网站,该网站为癌症幸存者提供各种功能,并由其专科护士提供支持,以及一个面向雇主、职业医师和普通医师的公共网站。该电子健康干预措施似乎是可行的。我们通过添加更多关于不同癌症类型及其对重返工作可能影响的信息对其进行了微调。
多利益相关者和混合方法设计在电子健康干预措施的开发中似乎很有用。由于法律和隐私限制,满足所有最终用户的要求具有挑战性。该电子健康干预措施似乎是可行的,尽管在日常实践中的实施需要进一步研究。
荷兰试验注册编号(NTR):5190;http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=5190(由WebCite存档于http://www.webcitation.org/6hm4WQJqC)。