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德国体外受精登记册作为记录辅助生殖技术的工具。

The German IVF Register as an Instrument to Document Assisted Reproductive Technologies.

作者信息

Kadi S, Wiesing U

机构信息

Institut für Ethik und Geschichte der Medizin, Eberhard Karls Universität Tübingen, Tübingen.

出版信息

Geburtshilfe Frauenheilkd. 2016 Jun;76(6):680-684. doi: 10.1055/s-0042-108576.

DOI:10.1055/s-0042-108576
PMID:27365538
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4922890/
Abstract

The German IVF Register (Deutsches IVF-Register [D.I.R]) has been collecting and publishing data on the use of IVF and related methods in Germany since 1982. It is the only institution which provides information for all of Germany on procedures and their success rates. For this reason it plays an important role in the provision of information to the public, to patients, political decision-makers and the scientific community. However, the register does not have the data of all centers offering treatment in Germany nor does it have complete datasets on all reported treatments. The register accepts retrospective data entries, it does not publish the success rates of individual centers and up until 2015 it did not provide a summary of information which was suitable for non-specialists. The D.I.R has been the focus of criticism in the past. Even today, the information it provides to the scientific community, the public, political decision-makers and potential patients on the outcomes of assisted reproduction is insufficient. The documentation of reproductive medicine procedures in other countries is much more meaningful.

摘要

德国体外受精登记处(德语:Deutsches IVF-Register [D.I.R])自1982年起便开始收集并公布德国体外受精及相关方法的使用数据。它是唯一一家能为全德国提供有关治疗程序及其成功率信息的机构。因此,它在向公众、患者、政治决策者和科学界提供信息方面发挥着重要作用。然而,该登记处并未掌握德国所有提供治疗的中心的数据,也没有所有已报告治疗的完整数据集。该登记处接受回顾性数据录入,不公布各个中心的成功率,并且直到2015年,它都未提供适合非专业人士的信息汇总。过去,德国体外受精登记处一直是批评的焦点。即便在今天,它向科学界、公众、政治决策者和潜在患者提供的有关辅助生殖结果的信息仍然不足。其他国家生殖医学程序的记录要更有意义得多。

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ART Registries-Characteristics and experiences: A comparative study.抗逆转录病毒治疗登记处——特征与经验:一项比较研究。
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Editor's Comment on the Review of the German IVF Register and the Subsequent Discussion , .编辑对德国体外受精登记册综述及后续讨论的评论
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本文引用的文献

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