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儿童癌症中父母对疾病的评估、父母的适应情况以及父母报告的孩子的生活质量

Parent illness appraisals, parent adjustment, and parent-reported child quality of life in pediatric cancer.

作者信息

Mullins Larry L, Cushing Christopher C, Suorsa Kristina I, Tackett Alayna P, Molzon Elizabeth S, Mayes Sunnye, McNall-Knapp Rene, Mullins Alexandria J, Gamwell Kaitlyn L, Chaney John M

机构信息

a Department of Psychology , Oklahoma State University , Stillwater , Oklahoma , USA.

b Department of Psychology , University of Kansas , Lawrence , Kansas , USA.

出版信息

Pediatr Hematol Oncol. 2016 Aug;33(5):314-326. doi: 10.1080/08880018.2016.1198443. Epub 2016 Jul 20.

Abstract

Psychosocial distress is a salient construct experienced by families of children with newly diagnosed cancer, but little is known about parental appraisal of the child's illness and the subsequent impact this may have on child and parent functioning. The goal of the present study was to examine the interrelationships among multiple parent illness appraisals, parent adjustment outcomes, and parent-reported child quality of life in parents of children diagnosed with cancer. Parents completed measures of illness appraisal (illness uncertainty and attitude toward illness), parent adjustment (general distress, posttraumatic stress, parenting stress), and child quality of life (general and cancer-related). Path analysis revealed direct effects for parent illness uncertainty and illness attitudes on all 3 measures of parent adjustment. Illness uncertainty, but not illness attitudes, demonstrated a direct effect on parent-reported child general quality of life; parenting stress had direct effects on general and cancer-related quality of life. Exploratory analyses indicated that parent illness uncertainty and illness attitudes conferred indirect effects on parent-reported general and cancer-related quality of life through parenting stress. Negative parent illness appraisals appear to have adverse impacts on parents' psychosocial functioning and have implications for the well-being of their child with cancer.

摘要

心理社会困扰是新诊断出患有癌症的儿童家庭所经历的一个显著现象,但对于父母对孩子疾病的评估以及这可能对孩子和父母功能产生的后续影响,我们知之甚少。本研究的目的是探讨被诊断患有癌症的儿童的父母对疾病的多种评估、父母的适应结果以及父母报告的孩子生活质量之间的相互关系。父母完成了疾病评估(疾病不确定性和对疾病的态度)、父母适应(一般困扰、创伤后应激、育儿压力)以及孩子生活质量(一般和与癌症相关的)的测量。路径分析揭示了父母疾病不确定性和疾病态度对父母适应的所有三项测量指标都有直接影响。疾病不确定性而非疾病态度,对父母报告的孩子总体生活质量有直接影响;育儿压力对总体和与癌症相关的生活质量有直接影响。探索性分析表明,父母疾病不确定性和疾病态度通过育儿压力对父母报告的总体和与癌症相关的生活质量产生间接影响。父母对疾病的负面评估似乎对父母的心理社会功能有不利影响,并对他们患有癌症的孩子的幸福产生影响。

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