Freeman Emily
London School of Economics and Political Science, Department of Social Policy, Houghton Street, London WC2A 2AE, United Kingdom.
Soc Sci Med. 2016 Sep;164:35-43. doi: 10.1016/j.socscimed.2016.07.006. Epub 2016 Jul 9.
The combination of HIV- and age-related stigma exacerbates prevalence of HIV infection and late diagnosis and initiation of anti-retroviral therapy among older populations (Moore, 2012; Richards et al. 2013). Interventions to address these stigmas must be grounded in understanding of situated systems of beliefs about illness and older age. This study analyses constructions of HIV and older age that underpinned the stigmatisation of older adults with HIV in rural Balaka, Malawi. It draws on data from a series of in-depth interviews (N = 135) with adults aged 50-∼90 (N = 43) in 2008-2010. Around 40% (n = 18) of the sample had HIV. Dominant understandings of HIV in Balaka pertained to the sexual transmission of the virus and poor prognosis of those infected. They intersected with understandings of ageing. Narratives about older age and HIV in older age both centred on the importance of having bodily, moral and social power to perform broadly-defined "work". Those who could not work were physically and socially excluded from the social world. This status, labelled as "child-like", was feared by all participants. In participants' narratives, growing old involves a gradual decline in the power required to produce one's membership of the social world through work. HIV infection in old age is understood to accelerate this decline. Understandings of the sexual transmission of HIV, in older age, imply the absence of moral power and in turn, loss of social power. The prognosis of those with HIV, in older age, reflects and causes amplified loss of bodily power. In generating dependency, this loss of bodily power infantilises older care recipients and jeopardises their family's survival, resulting in further loss of social power. This age-and HIV-related loss of power to produce social membership through work is the discrediting attribute at the heart of the stigmatisation of older people with HIV.
与艾滋病毒和年龄相关的耻辱感相互交织,加剧了老年人群中艾滋病毒感染率、晚期诊断率以及抗逆转录病毒治疗的延迟启动情况(Moore,2012;Richards等人,2013)。解决这些耻辱感的干预措施必须基于对关于疾病和老年的特定信念体系的理解。本研究分析了在马拉维巴拉卡农村地区,导致感染艾滋病毒的老年人受到污名化的艾滋病毒与老年的观念建构。它借鉴了2008 - 2010年对年龄在50 - 90岁之间的成年人(N = 135)进行的一系列深度访谈的数据,其中约40%(n = 18)的样本感染了艾滋病毒。在巴拉卡,对艾滋病毒的主流认知与病毒的性传播以及感染者的不良预后有关,这些认知与对衰老的理解相互交织。关于老年和老年艾滋病毒感染者的叙述都围绕着拥有身体、道德和社会权力以从事广义“工作”的重要性。那些无法工作的人在身体和社会层面上被排除在社会世界之外。所有参与者都惧怕这种被贴上“孩子气”标签的状态。在参与者的叙述中,变老意味着通过工作来确立自己在社会世界中的成员身份所需的能力逐渐下降。老年时期感染艾滋病毒被认为会加速这种下降。在老年人群中,对艾滋病毒性传播的理解意味着道德权力的缺失,进而导致社会权力的丧失。老年艾滋病毒感染者的预后反映并加剧了身体能力的丧失,导致依赖状态,使接受照料的老年人变得幼稚,并危及他们家庭的生存,进而导致社会权力的进一步丧失。这种因年龄和艾滋病毒导致的通过工作确立社会成员身份的能力丧失,是感染艾滋病毒的老年人受到污名化的核心诋毁因素。