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世界卫生组织《国际功能、健康和残疾分类》在婴幼儿人工耳蜗植入管理模式中的作用

The Role of the World Health Organization's International Classification of Functioning, Health and Disability in Models of Infant Cochlear Implant Management.

作者信息

Psarros Colleen, Love Sarah

机构信息

Sydney Cochlear Implant Centre (SCIC), Gladesville, NSW, Australia; The Hearing CRC, Victoria, Australia.

Sydney Cochlear Implant Centre (SCIC), Gladesville, NSW, Australia.

出版信息

Semin Hear. 2016 Aug;37(3):272-90. doi: 10.1055/s-0036-1584414.

Abstract

Newborn hearing screening has led to the early diagnosis of hearing loss in neonates and early device fitting is common, based primarily on electrophysiologic and radiologic information, with some supplementary behavioral measures. Such early fitting of hearing devices, in particular cochlear implants (CIs), has been beneficial to the majority of children implanted under the age of 12 months who meet the cochlear implant candidacy criteria. Comorbidities are common in children with hearing loss, although they may not be evident in neonates and may not emerge until later in infants. Evidence suggests that the child's outcomes are strongly influenced by a range of environmental factors including emotional and social support from the immediate and extended family. Consequently, such factors are important in service planning and service delivery for babies and children receiving CIs. The World Health Organization's International Classification of Functioning, Health and Disability (ICF) can provide a framework to facilitate the holistic management of pediatric cochlear implant recipients. The ICF also can be used to map the progress of recipients over time to highlight emerging issues that require intervention. This article will discuss our preliminary use of the ICF to establish clinical practice; develop advocacy skills among clients and their families; identify eligibility for services such as support in educational settings; enable access to modes of service delivery such as telepractice; provide a conceptual framework for policy and program development for pediatric cochlear implant recipients (i.e., in both disability and health services); and, most importantly, establish a clear pathway for the longitudinal management of the cochlear implant in a child's future. It is anticipated that this model will be applied to other populations receiving cochlear implants through our program.

摘要

新生儿听力筛查已能早期诊断新生儿听力损失,早期佩戴设备很常见,主要基于电生理和放射学信息,并辅以一些行为测量方法。这种早期佩戴听力设备,尤其是人工耳蜗(CI),对大多数符合人工耳蜗植入标准且在12个月龄以下接受植入的儿童有益。听力损失儿童常伴有其他疾病,尽管在新生儿期可能不明显,可能要到婴儿后期才会出现。有证据表明,儿童的预后受一系列环境因素的强烈影响,包括直系亲属和大家庭给予的情感和社会支持。因此,这些因素在为接受人工耳蜗植入的婴幼儿提供服务规划和服务时很重要。世界卫生组织的《国际功能、残疾和健康分类》(ICF)可为促进小儿人工耳蜗植入受者的整体管理提供一个框架。ICF还可用于跟踪受者随时间推移的进展情况,以突出需要干预的新出现问题。本文将讨论我们初步使用ICF来确立临床实践;培养服务对象及其家庭的宣传技能;确定获得教育环境支持等服务的资格;实现获得远程医疗等服务提供模式;为小儿人工耳蜗植入受者(即在残疾和健康服务领域)的政策和项目制定提供一个概念框架;以及,最重要的是,为儿童未来人工耳蜗的纵向管理建立一条清晰的路径。预计该模式将通过我们的项目应用于其他接受人工耳蜗植入的人群。

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