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社区代表性的挑战。

The Challenge of Community Representation.

作者信息

Lawrence Carlton, Stewart Kearsley

机构信息

1 Duke University, Durham, NC, USA.

2 Harvard Medical School, Boston, MA, USA.

出版信息

J Empir Res Hum Res Ethics. 2016 Oct;11(4):311-321. doi: 10.1177/1556264616665760. Epub 2016 Sep 16.

DOI:10.1177/1556264616665760
PMID:27552841
Abstract

Although community advisory boards (CABs) are widely used in clinical research, there is limited data regarding their composition and structure, especially in Africa. Our research provides the first qualitative study of the membership practices, selection methods, and qualifications of the six major HIV research centers that comprise the Ugandan National CAB Network (UNCN). Researchers conducted interviews ( n = 45) with CAB members and research liaisons at each of the sites. While selection practices and demographics varied between the sites, all six CABs exclusively followed a broad community membership model. Results suggest successful CABs are context dependent and thus distinct guidelines may be needed based on variables including CAB funding level, representation model, and research focus.

摘要

尽管社区咨询委员会(CABs)在临床研究中被广泛使用,但关于其组成和结构的数据有限,尤其是在非洲。我们的研究首次对构成乌干达国家咨询委员会网络(UNCN)的六个主要艾滋病毒研究中心的成员实践、选拔方法和资格进行了定性研究。研究人员对每个站点的咨询委员会成员和研究联络人进行了访谈(n = 45)。虽然各站点的选拔实践和人口统计学特征各不相同,但所有六个咨询委员会都完全遵循广泛的社区成员模式。结果表明,成功的咨询委员会取决于具体情况,因此可能需要根据包括咨询委员会资金水平、代表模式和研究重点等变量制定不同的指导方针。

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