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基于网络的轴性脊柱关节炎患者物理治疗(WEBPASS)——一项研究方案。

Web-based physiotherapy for people with axial spondyloarthritis (WEBPASS) - a study protocol.

作者信息

Paul L, Coulter E H, Cameron S, McDonald M T, Brandon M, Cook D, McConnachie A, Siebert S

机构信息

School of Medicine, Dentistry and Nursing, University of Glasgow, Scotland, G12 8LL, UK.

Rheumatology Service, NHS Greater Glasgow and Clyde, Scotland, UK.

出版信息

BMC Musculoskelet Disord. 2016 Aug 24;17(1):360. doi: 10.1186/s12891-016-1218-1.

Abstract

BACKGROUND

Evidence suggests people with axial spondyloarthritis (axial SpA) should exercise up to five times per week but lack of time, symptoms, cost and distance are barriers to regular exercise in axial SpA. Personalised exercise programmes delivered via the internet might support people with axial SpA to reach these exercise targets. The aim of this study is to investigate the effect of, and adherence to, a 12 month personalised web-based physiotherapy programme for people with axial SpA.

METHODS

Fifty people with axial SpA will be recruited to this prospective, interventional cohort study. Each participant will be assessed by a physiotherapist and an individualised exercise programme set up on www.webbasedphysio.com . Participants will be asked to complete their programme five times per week for 12 months. With the exception of adherence, data will be collected at baseline, 6 and 12 months.

DISCUSSION

The primary outcome measure is adherence to the exercise programme over each four week cycle (20 sessions maximum per cycle) and over the 12 months. Secondary measures include function (BASFI), disease activity (BASDAI), work impairment (WPAI:SpA), quality of life (ASQoL, EQ5D), attitude to exercise (EMI-2, EAQ), spinal mobility (BASMI), physical activity and the six minute walk test. Participants will also be interviewed to explore their adherence, or otherwise, to the intervention. This study will determine the adherence and key clinical outcomes of a targeted web-based physiotherapy programme for axial SpA. This data will inform clinical practice and the development and implementation of similar programmes.

TRIAL REGISTRATION

ClinicalTrials.gov: NCT02666313 , 20th January 2016.

摘要

背景

有证据表明,患有中轴型脊柱关节炎(axial SpA)的患者每周应进行多达五次的锻炼,但时间不足、症状、费用和距离等因素是中轴型脊柱关节炎患者定期锻炼的障碍。通过互联网提供的个性化锻炼计划可能有助于中轴型脊柱关节炎患者实现这些锻炼目标。本研究的目的是调查一项为期12个月的针对中轴型脊柱关节炎患者的基于网络的个性化物理治疗计划的效果及依从性。

方法

将招募50名中轴型脊柱关节炎患者参与这项前瞻性干预队列研究。每位参与者将由一名物理治疗师进行评估,并在www.webbasedphysio.com上制定个性化锻炼计划。参与者将被要求每周完成五次计划,持续12个月。除依从性外,数据将在基线、6个月和12个月时收集。

讨论

主要结局指标是每个四周周期(每个周期最多20次疗程)以及12个月内对锻炼计划的依从性。次要指标包括功能(BASFI)、疾病活动度(BASDAI)、工作障碍(WPAI:SpA)、生活质量(ASQoL、EQ5D)、对锻炼的态度(EMI-2、EAQ)、脊柱活动度(BASMI)、身体活动和六分钟步行试验。还将对参与者进行访谈,以探讨他们对干预措施的依从性或其他情况。本研究将确定针对中轴型脊柱关节炎的有针对性的基于网络的物理治疗计划的依从性和关键临床结局。这些数据将为临床实践以及类似计划的开发和实施提供参考。

试验注册

ClinicalTrials.gov:NCT02666313,2016年1月20日。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/93c2/4995794/489d2a4d26b1/12891_2016_1218_Fig1_HTML.jpg

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