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癌症青少年患者及儿童癌症青少年幸存者的生活质量评估。

Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer.

作者信息

Vlachioti Efrosini, Perdikaris Pantelis, Megapanou Efstathia, Sava Floria, Matziou Vasiliki

机构信息

Service Nursing Education Department, "Agia Sophia" Children's Hospital, Athens, Greece.

Head Nurse, Pediatric Oncology Department, General Children's Hospital "P & A Kyriakou," Lecturer (407/80), Department of Nursing, University of Peloponnese, Athens, Greece.

出版信息

J Spec Pediatr Nurs. 2016 Oct;21(4):178-188. doi: 10.1111/jspn.12154. Epub 2016 Aug 23.

Abstract

PURPOSE

The aim of the study was to assess the quality of life (QoL) of adolescents with cancer and survivors of childhood cancer as well as the effect of various demographic factors upon it.

DESIGN AND METHODS

The sample of the study included 82 adolescents aged 13-20 years who had been diagnosed with any type of cancer. Twenty-six of them received treatment and 56 survivors of childhood cancer had successfully completed their treatment. Data collection lasted from July 2010 to December 2012 in Children's Hematology-Oncology Unit in Athens. For data collection, Minneapolis-Manchester Quality Questionnaire of Life Instrument was used. The assessment of the QoL of adolescents undergoing treatment was performed with three measurements and that of the survivors with one.

RESULTS

The QoL of adolescent patients did not significantly change during treatment and they showed a satisfactory QoL. Boys scored higher than girls (z = -1.78, p = .04 in psychological function and t = 2.27, p = .02 in body image) as far as QoL in social relations is concerned (z = -2.79, p = .002 in first measurement and z = -2.31, p = .01 in second measurement). Scores on the scale for the QoL of survivors of childhood cancer who completed treatment was 3.91. Survivors showed a higher QoL than the adolescent patients.

CONCLUSIONS

This research has shown that the studied population scored a sufficient QoL, especially survivors of childhood cancer ones. Moreover, their QoL seemed to be influenced by the stage of treatment, the type of cancer, sex, age, family support, and their level of education.

摘要

目的

本研究旨在评估癌症青少年患者及儿童癌症幸存者的生活质量(QoL),以及各种人口统计学因素对其的影响。

设计与方法

本研究样本包括82名年龄在13 - 20岁之间、被诊断患有任何类型癌症的青少年。其中26人正在接受治疗,56名儿童癌症幸存者已成功完成治疗。数据收集于2010年7月至2012年12月在雅典儿童血液肿瘤科进行。数据收集使用了明尼阿波利斯 - 曼彻斯特生活质量问卷工具。对正在接受治疗的青少年的生活质量进行了三次测量评估,对幸存者进行了一次测量评估。

结果

青少年患者在治疗期间的生活质量没有显著变化,且他们的生活质量令人满意。就社会关系方面的生活质量而言,男孩得分高于女孩(心理功能方面z = -1.78,p = 0.04;身体形象方面t = 2.27,p = 0.02;第一次测量z = -2.79,p = 0.002,第二次测量z = -2.31,p = 0.01)。完成治疗的儿童癌症幸存者的生活质量量表得分是3.91。幸存者的生活质量高于青少年患者。

结论

本研究表明,所研究人群的生活质量得分充足,尤其是儿童癌症幸存者。此外,他们的生活质量似乎受到治疗阶段、癌症类型、性别、年龄、家庭支持和教育水平的影响。

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