Trivedi Paraag, Rosaasen Nicola, Mansell Holly
1 College of Pharmacy and Nutrition, University Of Saskatchewan, Saskatoon, Saskatchewan, Canada.
2 Saskatchewan Transplant Program, St Paul's Hospital, Saskatoon, Saskatchewan, Canada.
Prog Transplant. 2016 Dec;26(4):322-327. doi: 10.1177/1526924816664081. Epub 2016 Sep 20.
Adequate patient education is essential for preparing potential recipients for kidney transplantation. Health-care providers play a vital role in education and can identify gaps in patient understanding.
To identify deficits in patient knowledge from the perspective of a transplant multidisciplinary care team and determine whether their perceptions align with patients who have previously undergone a transplant.
An open call was advertised for health-care providers to attend a focus group discussion regarding the educational needs of pretransplant patients in 1 Canadian center. A predetermined, semistructured set of questions was used to collect the views of transplant caregivers. A moderator, assistant moderator, and research assistant facilitated the discussion, which was transcribed verbatim. Paper surveys were distributed to collect opinions of those unable to attend or uncomfortable to voice their opinion in an open forum. Qualitative analysis software was used to identify any emergent themes. Results were compared to a previous study undertaken in transplant recipients.
Despite pre- and posttransplant education, specific themes emerged including misconceptions about the assessment process and time on the wait list and the surgery, incongruency between patient expectations and outcome, and confusion regarding medications. Health-care provider perceptions were remarkably consistent with transplant recipients.
Health-care providers identified gaps in patient understanding indicating that transplant candidates may not be internalizing what is taught. Innovative educational approaches may be needed to provide more successful patient education. Similarities between health-care provider and patient perceptions suggest that care providers are a valuable source of information.
对潜在的肾移植受者进行充分的患者教育对于为移植做准备至关重要。医疗保健提供者在教育中发挥着至关重要的作用，并且能够识别患者理解方面的差距。
从移植多学科护理团队的角度识别患者知识方面的缺陷，并确定他们的看法是否与之前接受过移植的患者一致。
在加拿大的一个中心发布了公开召集令，邀请医疗保健提供者参加关于移植前患者教育需求的焦点小组讨论。使用一组预先确定的半结构化问题来收集移植护理人员的意见。由一名主持人、一名助理主持人和一名研究助理推动讨论，并逐字记录。发放纸质调查问卷以收集那些无法参加或在公开论坛中不愿表达意见者的看法。使用定性分析软件来识别任何新出现的主题。将结果与之前在移植受者中进行的一项研究进行比较。
尽管进行了移植前和移植后的教育，但仍出现了一些特定主题，包括对评估过程、等待名单上的时间以及手术的误解，患者期望与结果之间的不一致，以及对药物的困惑。医疗保健提供者的看法与移植受者非常一致。
医疗保健提供者识别出了患者理解方面的差距，这表明移植候选人可能没有将所教授的内容内化为自己的知识。可能需要创新的教育方法来提供更成功的患者教育。医疗保健提供者和患者看法之间的相似性表明护理人员是一个有价值的信息来源。
