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重塑与年龄相关性视力丧失(ARVL)相关的残疾认知:将批判性残疾视角纳入研究与实践。

Reshaping understandings of disability associated with age-related vision loss (ARVL): incorporating critical disability perspectives into research and practice.

作者信息

McGrath Colleen, Rudman Debbie Laliberte, Trentham Barry, Polgar Jan, Spafford Marlee M

机构信息

a School of Occupational Therapy , Western University , London , Ontario , Canada.

b Department of Occupational Science and Occupational Therapy , University of Toronto , Toronto , Ontario , Canada.

出版信息

Disabil Rehabil. 2017 Sep;39(19):1990-1998. doi: 10.1080/09638288.2016.1212116. Epub 2016 Aug 24.

Abstract

PURPOSE

In this paper, we have sought to stimulate a critical dialog regarding the ways in which disability has been largely conceptualized and studied in literature addressing age-related vision loss (ARVL). We suggest an expansion of this largely biomedically informed research area to include alternative frameworks, namely critical disability perspectives.

METHOD

To demonstrate the potential contributions of adopting a critical disability approach to enhance understandings of ARVL, this article outlined the primary tenets of the biomedical and social models of disability; the key aims, emphases, and assumptions of critical disability perspectives; and provided examples of how such an approach would lead to new research foci in the study of ARVL.

RESULTS

The paper highlighted four qualities of critical disability perspectives that future ARVL research should ascribe to, including (a) a focus on interdependence over traditional notions of independence; (b) a broader conceptualization of 'normalcy'; (c) the influence of language as a means of describing or labeling disabled persons; and (d) the influence of the socio-political environment in the creation and sustainment of disability.

CONCLUSIONS

This paper encouraged the incorporation of critical disability perspectives to provide new ways of conceptualizing, researching, writing about, and practicing in relation to ARVL. Implications for Rehabilitation The application of critical disability perspectives to expand the boundaries of low vision research can broaden low vision rehabilitation services (LVRS) in ways that more effectively attend to environmental features shaping and perpetuating disability for clients with age-related vision loss (ARVL). Low vision research, informed by critical disability perspectives, would inform a shift away from the exclusive focus on independence towards an acknowledgment of interdependence. The integration of participatory research approaches in ARVL research could generate new insights to inform rehabilitation by enhancing space and respect for the stories and knowledge of older adults aging with vision loss. Greater attention in low vision rehabilitation should be paid to how older adults' experiences of disability are tied to both the environmental context in which they exist and by the limitations caused by their impairment.

摘要

目的

在本文中,我们试图引发一场批判性对话,讨论在有关年龄相关性视力丧失(ARVL)的文献中,残疾在很大程度上是如何被概念化和研究的。我们建议扩展这个在很大程度上以生物医学为导向的研究领域,纳入其他框架,即批判性残疾视角。

方法

为了证明采用批判性残疾方法对增进对ARVL的理解的潜在贡献,本文概述了残疾的生物医学模型和社会模型的主要原则;批判性残疾视角的关键目标、重点和假设;并举例说明了这种方法如何在ARVL研究中产生新的研究重点。

结果

本文强调了未来ARVL研究应具备的批判性残疾视角的四个特质,包括:(a)关注相互依存而非传统的独立概念;(b)对“常态”进行更广泛的概念化;(c)语言作为描述或给残疾人贴标签的手段所产生的影响;以及(d)社会政治环境在残疾的产生和维持中的影响。

结论

本文鼓励纳入批判性残疾视角,以提供有关ARVL的概念化、研究、写作和实践的新方法。康复的意义将批判性残疾视角应用于扩大低视力研究的边界,可以拓宽低视力康复服务(LVRS),从而更有效地关注影响年龄相关性视力丧失(ARVL)患者残疾形成和持续存在的环境特征。以批判性残疾视角为指导的低视力研究,将促使研究重点从单纯关注独立性转向承认相互依存。在ARVL研究中整合参与性研究方法,可以通过增加对视力丧失老年人的故事和知识的空间及尊重,产生新的见解以指导康复。在低视力康复中,应更加关注老年人的残疾经历如何与他们所处的环境背景以及由其损伤所造成的限制相关联。

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