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青少年特发性脊柱侧弯手术患者的体验:一项现象学分析。

Patients' experience of adolescent idiopathic scoliosis surgery: a phenomenological analysis.

作者信息

Honeyman Cheryl, Davison Jean

机构信息

James Cook University Hospital, Middlesbrough.

School of Health and Social Care, Teesside University.

出版信息

Nurs Child Young People. 2016 Sep 12;28(7):29-36. doi: 10.7748/ncyp.2016.e726.

DOI:10.7748/ncyp.2016.e726
PMID:27615585
Abstract

Background Adolescent idiopathic scoliosis is a three-dimensional curvature of the spine of unknown cause that occurs in often otherwise fit young people. A complex surgical procedure is required for the most severe curves. Quantitative literature suggests scoliosis surgery improves patients' lives, while qualitative literature focuses on patients' concerns rather than their experience. Aims To explore how adolescents interpret their perioperative experience. Method Six participants, aged 15-18, were interviewed and transcripts were analysed. Findings Four themes were identified: shock, fears and worries; parental interaction; coping; and motivation and positivity. Conclusion Participants were reluctant to share concerns, however those they shared related more to fear of the unknown and lack of control than specific issues such as pain. Participants depended on their parents, especially their mothers, during the perioperative period, and they recognised their parents' stress. Participants coped well, were motivated and had a positive outlook.

摘要

背景

青少年特发性脊柱侧凸是一种病因不明的脊柱三维弯曲,常发生在其他方面健康的年轻人身上。对于最严重的脊柱侧凸需要进行复杂的外科手术。定量文献表明脊柱侧凸手术能改善患者生活,而定性文献则关注患者的担忧而非经历。目的:探讨青少年如何解读他们的围手术期经历。方法:对6名年龄在15至18岁的参与者进行访谈并分析访谈记录。结果:确定了四个主题:震惊、恐惧和担忧;父母的互动;应对;以及动力和积极态度。结论:参与者不愿分享担忧,然而他们所分享的担忧更多与对未知的恐惧和缺乏控制有关,而非疼痛等具体问题。参与者在围手术期依赖父母,尤其是母亲,并且他们意识到父母的压力。参与者应对良好,有动力且态度积极。

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The reunion with my patients: their journey and experience 30 years after their intervention for adolescent idiopathic scoliosis via CD instrumentation.与我的患者重逢:他们接受青少年特发性脊柱侧凸 CD 器械治疗后 30 年的经历和感悟。
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The experience of living with adolescent idiopathic scoliosis: a qualitative evidence synthesis using meta-ethnography.
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