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“宝贝多伊”、国会与各州:挑战针对残障婴儿的联邦治疗标准

Baby Doe, Congress and the states: challenging the federal treatment standard for impaired infants.

作者信息

Newman S A

机构信息

New York Law School.

出版信息

Am J Law Med. 1989;15(1):1-60.

PMID:2764010
Abstract

In its amendments to the Child Abuse Prevention and Treatment Act, Congress set forth a strict standard for treatment of impaired infants. The statute, shaped by right-to-life groups and certain medical organizations, calls for aggressive treatment in virtually all cases, regardless of the degree of suffering imposed and the burdens and risks involved. The federal rule evidences deep distrust of parental decisionmaking, relegating most parents to a nonparticipatory bystander role. Congress did not make its rule binding on the states. Rather, it conditioned the receipt of federal funds upon incorporation of the rule into each state's law. Most states have accepted the condition, largely through rulemaking by state child abuse agencies. This article challenges the authority of state administrators to promulgate these rules, and argues that state constitutions, little mentioned in the Baby Doe debate thus far, may prohibit many states from adopting the federal standard. Ordering medical interventions that perpetuate extreme conditions of physical and mental devastation, subjecting infants to grave suffering for uncertain benefits, and depriving parents of virtually all decisionmaking power violates the norm of governments constitutionally committed to individual liberty, human dignity and family autonomy. A constitutionally sound approach to this issue would permit careful, ethical deliberation, attention to the individual circumstances of each infant Doe and a reasonable degree of parental control.

摘要

在对《预防和治疗虐待儿童法案》的修订中,国会为治疗受损婴儿制定了严格标准。该法规由生命权组织和某些医学组织促成,要求在几乎所有情况下都进行积极治疗,无论所带来的痛苦程度以及所涉及的负担和风险如何。联邦法规表明对父母决策的深深不信任,将大多数父母沦为无参与权的旁观者角色。国会并未使该法规对各州具有约束力。相反,它将获得联邦资金的条件设定为将该法规纳入每个州的法律。大多数州已接受该条件,主要是通过州虐待儿童机构的规则制定来实现。本文质疑州行政人员颁布这些规则的权威,并认为在迄今为止的“婴儿多伊”辩论中很少被提及的州宪法,可能会禁止许多州采用联邦标准。下令进行医疗干预,使身心遭受极度破坏的状况永久化,让婴儿承受巨大痛苦却只为不确定的益处,并且几乎剥夺父母所有决策权,这违反了宪法规定致力于个人自由、人类尊严和家庭自治的政府规范。对此问题采用符合宪法的合理做法应允许进行审慎、符合道德的审议,关注每个婴儿多伊的具体情况以及给予父母合理程度的控制权。

相似文献

1
Baby Doe, Congress and the states: challenging the federal treatment standard for impaired infants.“宝贝多伊”、国会与各州:挑战针对残障婴儿的联邦治疗标准
Am J Law Med. 1989;15(1):1-60.
2
Baby doe redux? The Department of Health and Human Services and the Born-Alive Infants Protection Act of 2002: a cautionary note on normative neonatal practice.“婴儿多伊”事件重演?美国卫生与公众服务部及2002年《出生时存活婴儿保护法》:关于规范新生儿医疗行为的警示
Pediatrics. 2005 Oct;116(4):e576-85. doi: 10.1542/peds.2005-1590.
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Ethical and legal issues in the care of the impaired newborn.照料残疾新生儿中的伦理和法律问题。
Clin Perinatol. 1987 Jun;14(2):345-60.
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Severely handicapped infants with life-threatening conditions: federal intrusions into the decision not to treat.患有危及生命疾病的严重残疾婴儿:联邦政府对不进行治疗决策的干预。
Am J Law Med. 1986;12(2):171-205.
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Withholding treatment from Baby Doe: from discrimination to child abuse.
Milbank Mem Fund Q Health Soc. 1985 Winter;63(1):18-51.
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Child abuse and neglect prevention and treatment program--HHS. Notice of proposed rulemaking.儿童虐待与忽视预防及治疗项目——美国卫生与公众服务部。拟议规则制定通知。
Fed Regist. 1984 Dec 10;49(238):48160-9.
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A moment in human development: legal protection, ethical standards and social policy on the selective non-treatment of handicapped neonates.
Am J Law Med. 1985;11(1):31-78.
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The Baby Doe rule: still a threat.《婴儿多伊规则》:仍然构成威胁。
Hastings Cent Rep. 1986 Apr;16(2):8-14.
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Child abuse and neglect prevention and treatment program--HHS. Final rule.儿童虐待与忽视预防及治疗项目——美国卫生与公众服务部。最终规则。
Fed Regist. 1985 Apr 15;50(72):14878-92.
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