Jacobs M, Henselmans I, Arts D L, Ten Koppel M, Gisbertz S S, Lagarde S M, van Berge Henegouwen M I, Sprangers M A G, de Haes H C J M, Smets E M A
Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
Department of Clinical Informatics, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
Eur J Cancer Care (Engl). 2018 Jan;27(1). doi: 10.1111/ecc.12593. Epub 2016 Oct 13.
We developed a web-based question prompt sheet (QPS) to support information provision of health-related quality of life (HRQL) topics after oesophageal cancer surgery. The QPS was evaluated and updated in three consecutive studies. In Study 1, eight patients were guided in using the QPS. Feasibility was assessed by cognitive walkthrough, questionnaire and interview. We obtained 430 notes (217 negative, 213 positive) of patients' actions and or remarks, and 91 suggestions. With minor support, most patients were able to use the QPS. In Study 2, forty patients independently used and appraised a modified version of the QPS by questionnaire. All patients deemed the QPS to be usable and useful. In Study 3, 21 patients and three surgeons used the QPS in clinical practice. Clinical feasibility was assessed by the number of QPS sent to the researcher/surgeon. Patients and surgeons were surveyed and the follow-up consultation was audio-recorded. Surgeons were additionally interviewed. Twenty/fourteen patients sent their QPS to the researcher/surgeon. Five QPSs were read by the consultation surgeon. Patients considered the QPS usable and useful. Surgeons considered the QPS of added value and helpful in informing patients, but currently not clinically feasible due to increased consultation time.
我们开发了一个基于网络的问题提示表（QPS），以支持食管癌手术后与健康相关的生活质量（HRQL）主题的信息提供。在三项连续的研究中对QPS进行了评估和更新。在研究1中，指导了8名患者使用QPS。通过认知走查、问卷调查和访谈评估可行性。我们获得了430条关于患者行为和/或评论的记录（217条负面，213条正面）以及91条建议。在得到少量支持的情况下，大多数患者能够使用QPS。在研究2中，40名患者通过问卷调查独立使用并评估了QPS的一个修改版本。所有患者都认为QPS可用且有用。在研究3中，21名患者和3名外科医生在临床实践中使用了QPS。通过发送给研究人员/外科医生的QPS数量评估临床可行性。对患者和外科医生进行了调查，并对后续咨询进行了录音。还对外科医生进行了访谈。20/14名患者将他们的QPS发送给了研究人员/外科医生。会诊外科医生阅读了5份QPS。患者认为QPS可用且有用。外科医生认为QPS具有附加价值且有助于告知患者，但由于会诊时间增加，目前在临床上不可行。
