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自愿停止进食与饮水:有尊严地死去还是并非如此?

VSED: Death With Dignity or Without?

作者信息

Corbett Mark

出版信息

Narrat Inq Bioeth. 2016;6(2):109-113. doi: 10.1353/nib.2016.0026.

DOI:10.1353/nib.2016.0026
PMID:27763399
Abstract

Conceivably, in an ideal world, all patients with a life-limiting illness would receive optimal hospice and palliative care so that no one would ever wish to hasten their own death. The reality, however, is that despite provision of optimal hospice and palliative care, individuals with terminal illness experience suffering, loss of meaning, or deterioration in quality of life to the extent where they express the desire to expedite the dying process. While there has been extensive discussion surrounding physician-assisted death (PAD), there has been less attention paid to the practice of voluntary stopping eating and drinking (VSED) near the end of life. These twelve compelling narratives represent a dramatic groundswell of attention to the practice of VSED. Through my review of these narratives, numerous statements of significance emerged along with common ethical themes which bring to light matters that might otherwise remain idle. As such, integrity and autonomy become paramount while, unfortunately, logical fallacies like that of the slippery slope argument are asserted. Ultimately, the suffering that leads people to embrace VSED is compelling and must not be minimized. Therefore, this paper, while not comprehensive, is an attempt to dissect these major themes and offer recommendations for addressing concerns regarding end-of-life care that have surfaced during the VSED debate. It is through this endeavor that I will hopefully challenge prevailing assumptions and misconceptions that can only exist in an ideal world.

摘要

可以想象,在一个理想的世界里,所有患有绝症的患者都能得到最佳的临终关怀和姑息治疗,这样就不会有人希望加速自己的死亡。然而,现实情况是,尽管提供了最佳的临终关怀和姑息治疗,但绝症患者仍会遭受痛苦、失去生活意义或生活质量下降,以至于他们表达了加快死亡进程的愿望。虽然围绕医生协助死亡(PAD)已经有了广泛的讨论,但对于生命末期的自愿停止进食和饮水(VSED)做法却较少受到关注。这十二篇引人注目的叙述代表了对VSED做法的极大关注。通过对这些叙述的审视,出现了许多具有重要意义的陈述以及共同的伦理主题,揭示了那些可能 otherwise remain idle 的问题。因此,诚信和自主性变得至关重要,而不幸的是,像滑坡论证这样的逻辑谬误也被提出。最终,导致人们接受VSED的痛苦是令人信服的,绝不能被忽视。所以,本文虽然并不全面,但试图剖析这些主要主题,并就解决VSED辩论中出现的临终关怀问题提出建议。通过这项努力,我希望能够挑战那些只存在于理想世界中的普遍假设和误解。

相似文献

1
VSED: Death With Dignity or Without?自愿停止进食与饮水:有尊严地死去还是并非如此?
Narrat Inq Bioeth. 2016;6(2):109-113. doi: 10.1353/nib.2016.0026.
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Voluntary Stopping Eating and Drinking.自愿停止进食和饮水。
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VSED Narratives: Exploring Complexity.临终选择叙述:探索复杂性。
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Voluntary stopping of eating and drinking (VSED) as an unknown challenge in a long-term care institution: an embedded single case study.在长期护理机构中,自愿停止进食和饮水(VSED)作为一项未知挑战:一项嵌入式单案例研究。
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Options of Last Resort: Palliative Sedation, Physician Aid in Dying, and Voluntary Cessation of Eating and Drinking.终极选择:姑息性镇静治疗、医生协助自杀,以及自愿停止进食和饮水。
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Ethical Challenges for an Understanding of Suffering: Voluntary Stopping of Eating and Drinking and the Wish to Hasten Death in Advanced Patients.理解痛苦所面临的伦理挑战:晚期患者自愿停止进食和饮水以及希望加速死亡的问题。
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Introduction: Voluntarily Stopping Eating and Drinking.
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Voluntarily Stopping Eating and Drinking: A Practical Approach for Long-Term Care Facilities.自愿禁食禁饮:长期照护机构的实用方法。
J Palliat Med. 2018 Sep;21(9):1214-1220. doi: 10.1089/jpm.2018.0100. Epub 2018 Jun 5.
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Legal briefing: voluntarily stopping eating and drinking.法律简报:自愿停止进食和饮水
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引用本文的文献

1
Caring for patients during voluntarily stopping of eating and drinking (VSED): experiences of a palliative care team in Germany.在自愿停止进食和饮水期间照顾患者(VSED):德国一个姑息治疗团队的经验。
BMC Palliat Care. 2023 Nov 21;22(1):185. doi: 10.1186/s12904-023-01308-z.