Alotaibi Naif M, Samuel Nardin, Wang Justin, Ahuja Christopher S, Guha Daipayan, Ibrahim George M, Schweizer Tom A, Saposnik Gustavo, Macdonald R Loch
Division of Neurosurgery, Department of Surgery, University of Toronto, Toronto, Ontario, Canada; Institute of Medical Science, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
MD/PhD Program, University of Toronto, Toronto, Ontario, Canada.
World Neurosurg. 2017 Feb;98:456-462. doi: 10.1016/j.wneu.2016.11.085. Epub 2016 Nov 24.
The diagnosis of a ruptured or unruptured brain aneurysm has a significant impact on patients' quality of life and their psychosocial well-being. As a result, patients and caregivers may resort to social media platforms for support and education. The aim of this report is to evaluate the use of social media and the online communications regarding brain aneurysms.
Three social media platforms (Facebook, Twitter, and YouTube) were assessed for public content pertaining to brain aneurysms in March 2016. We conducted a mixed-method analysis that includes a descriptive examination of cross-sectional data and a qualitative evaluation of online communications for thematic analysis. We assessed categorized data using nonparametric tests for statistical significance.
Our analyses showed that Facebook was the most highly used social media platform, with 11 relevant pages and 83 groups. Facebook accounts were all nonprofit foundations or patient support groups. Most users in Facebook groups were joining private support groups as opposed to public (P < 0.05). The most frequently viewed category of YouTube videos was on treatment procedures (P < 0.001). Six prominent themes emerged from the coded data of posts and comments: inspiration and motivation (27.7%), providing and sharing information (26.3%), requesting information (14.4%), seeking emotional support (12.1%), admiration (8.3%), and loss and grief (8.3%).
This study is the first to provide insight into characteristics and patterns of social media communications regarding brain aneurysms. These findings should serve to inform the treating physicians of the needs and expectations of individuals affected by brain aneurysms.
脑动脉瘤破裂或未破裂的诊断对患者的生活质量及其心理社会幸福感有重大影响。因此，患者及其护理人员可能会求助于社交媒体平台以获取支持和教育。本报告的目的是评估社交媒体的使用情况以及有关脑动脉瘤的在线交流。
2016年3月，对三个社交媒体平台（脸书、推特和优兔）上有关脑动脉瘤的公开内容进行了评估。我们进行了一项混合方法分析，包括对横断面数据的描述性检查以及对在线交流进行定性评估以进行主题分析。我们使用非参数检验评估分类数据的统计学意义。
我们的分析表明，脸书是使用最频繁的社交媒体平台，有11个相关页面和83个群组。脸书账户均为非营利基金会或患者支持团体。脸书群组中的大多数用户加入的是私人支持团体，而非公共团体（P < 0.05）。优兔视频中最常被观看的类别是治疗程序（P < 0.001）。从帖子和评论的编码数据中出现了六个突出主题：鼓舞与动力（27.7%）、提供和分享信息（26.3%）、请求信息（14.4%）、寻求情感支持（12.1%）、钦佩（8.3%）以及失落与悲伤（8.3%）。
本研究首次深入了解了有关脑动脉瘤的社交媒体交流的特征和模式。这些发现应有助于告知治疗医生脑动脉瘤患者的需求和期望。
