L'Huillier M C, Steschenko D, Sommelet-Olive D, Bernard J L, Raybaud C
Service de pédiatrie II, hôpital d'enfants, Vandoeuvre, France.
Pediatrie. 1989;44(6):487-94.
The specificity of childhood cancers and the lack of available incidence data in Europe (with the exception of the Manchester and Turin registries) led to the creation of two French regional childhood cancer registries (CCR), in Nancy (1983) and Marseille (1984); both are population based CCR, respectively covering 535,236 and 809,196 children (0 to 14 years). All malignant neoplasms, brain tumours (whatever the grading) and borderline malignancies are included. Data have been collected from medical and administrative sources. Registration is active and each source is recontacted annually. The registries contact all physicians who might include children among their patients (private and hospital practice) and pathology-cytology laboratories. The University Hospital Centers and Anti-Cancer Centers in adjacent regions and in Paris are contacted. Data collected are the following: name, age, sex, address, time and method of diagnosis, histology, anatomical site, stage, treatment and sources of information. We combined our own data with those of a general cancer registry, set up in Strasbourg in 1975 and covering 205,889 children. The reliability of the methodology is attested by the similarity of results to those obtained in other European, US and Australian CCR. This type of registry is needed for organizing studies on the descriptive, analytical and experimental epidemiology in pediatric oncology.
儿童癌症的特异性以及欧洲缺乏可用的发病率数据（除曼彻斯特和都灵登记处外），促使法国建立了两个地区性儿童癌症登记处（CCR），分别位于南锡（1983年）和马赛（1984年）；这两个登记处均以人群为基础，分别覆盖535,236名和809,196名儿童（0至14岁）。所有恶性肿瘤、脑肿瘤（无论分级如何）和交界性恶性肿瘤均被纳入。数据收集自医疗和行政来源。登记工作积极开展，每年都会再次联系每个来源。登记处联系所有可能将儿童纳入患者群体的医生（私人诊所和医院）以及病理细胞学实验室。还会联系邻近地区和巴黎的大学医院中心及抗癌中心。收集的数据如下：姓名、年龄、性别、地址、诊断时间和方法、组织学、解剖部位、分期、治疗情况以及信息来源。我们将自己的数据与1975年在斯特拉斯堡设立的一个涵盖205,889名儿童的综合癌症登记处的数据相结合。该方法的可靠性通过与其他欧洲、美国和澳大利亚儿童癌症登记处获得的结果相似性得到证实。这种类型的登记处对于组织儿科肿瘤学的描述性、分析性和实验性流行病学研究是必要的。
