Chin Wei-Chih, Chao Kuo-Yu, Chang Hsueh-Ling, Li Hsin-Mei, Chen Sue-Hsien
Department of Psychiatry, Chang Gung Memorial Hospital, Keelung, Taiwan.
Department of Nursing, Chang Gung University of Science and Technology and Chang Gung Memorial Hospital, Keelung, Taiwan.
J Clin Nurs. 2017 Nov;26(21-22):3408-3421. doi: 10.1111/jocn.13700. Epub 2017 Feb 19.
To explore and describe the coping experiences of children with autism spectrum disorders in Taiwan.
Children with autism spectrum disorders are faced with daily social and living challenges, which can cause stress. Chinese culture emphasises discipline and obedience, which may influence coping strategies of children with autism spectrum disorders in Taiwan.
This qualitative study employed an exploratory descriptive design.
Data were collected from in-depth, face-to-face structured interviews. Interviews explored coping strategies of Taiwanese school-aged children (aged 6-19) with autism spectrum disorders. Children (N = 17) and their caregivers were recruited by purposive sampling. Transcribed interview data were thematically analysed using the procedure of Miles and Huberman.
Five themes emerged from the analysis of the data, which described the coping strategies of the children: (1) problem-solving, (2) acting-out, (3) avoidance, (4) seeking help and (5) self-regulation. These themes included multiple coping strategies, which employed the concepts of engagement and disengagement.
The children with autism spectrum disorder used many strategies to cope with the stresses resulting from behaviours and symptoms associated with the disorder. Most of the Taiwanese children use both problem-solving and emotional-focused coping strategies.
Understanding coping strategies of children with autism spectrum disorder could help caregivers (parents, teachers) and medical professionals develop interventions to reduce these challenges, which could alleviate stress and improve social functioning for these children.
探索并描述台湾自闭症谱系障碍儿童的应对经历。
自闭症谱系障碍儿童面临日常社交和生活挑战,这可能会导致压力。中国文化强调纪律和服从,这可能会影响台湾自闭症谱系障碍儿童的应对策略。
本定性研究采用探索性描述设计。
通过深入的面对面结构化访谈收集数据。访谈探讨了台湾学龄自闭症谱系障碍儿童(6 - 19岁)的应对策略。通过目的抽样招募了儿童(N = 17)及其照顾者。使用迈尔斯和休伯曼的程序对转录的访谈数据进行主题分析。
数据分析得出五个主题,描述了儿童的应对策略:(1)解决问题,(2)行为表现,(3)回避,(4)寻求帮助,(5)自我调节。这些主题包括多种应对策略,运用了参与和脱离的概念。
自闭症谱系障碍儿童使用多种策略来应对由该障碍相关行为和症状所导致的压力。大多数台湾儿童同时使用解决问题和以情绪为中心的应对策略。
了解自闭症谱系障碍儿童的应对策略有助于照顾者(父母、教师)和医疗专业人员制定干预措施以减少这些挑战,从而减轻压力并改善这些儿童的社会功能。