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增强型子宫内膜异位症存档软件(ENEAS):一种用于存储、检索、比较和共享日常实践中受子宫内膜异位症影响患者数据的应用程序。

Enhanced Endometriosis Archiving Software (ENEAS): An Application for Storing, Retrieving, Comparing, and Sharing Data of Patients Affected by Endometriosis Integrated in the Daily Practice.

作者信息

Centini Gabriele, Zannoni Letizia, Lazzeri Lucia, Buiarelli Paolo, Limatola Gianluca, Petraglia Felice, Seracchioli Renato, Zupi Errico

机构信息

Obstetrics and Gynecology Section, Department of Molecular and Developmental Medicine, University of Siena, Siena, Italy.

Section of Gynecology and Physiopathology of Reproduction, Department of Obstetrics and Gynecology, S. Orsola-Malpighi Hospital, University of Bologna, Bologna, Italy.

出版信息

J Minim Invasive Gynecol. 2017 Mar-Apr;24(3):494-500. doi: 10.1016/j.jmig.2016.12.008. Epub 2016 Dec 22.

Abstract

Endometriosis is a chronic benign disease affecting women of fertile age, associated with pelvic pain and subfertility, often with negative impacts on quality of life. Meetings involving 5 gynecologists skilled in endometriosis management and 2 informatics technology consultants competent in data management and website administration were enlisted to create an endometriosis databank known as ENEAS (Enhanced Endometriosis Archiving Software). This processing system allows users to store, retrieve, compare, and correlate all data collected in conjunction with different Italian endometriosis centers, with the collective objective of obtaining homogeneous data for a large population sample. ENEAS is a web-oriented application that can be based on any open-source database that can be installed locally on a server, allowing collection of data on approximately 700 items, providing standardized and homogeneous data for comparison and analysis. ENEAS is capable of generating a sheet incorporating all data on the management of endometriosis that is both accurate and suitable for each individual patient. ENEAS is an effective and universal web application that encourages providers in the field of endometriosis to use a common language and share data to standardize medical and surgical treatment, with the main benefits being improved patient satisfaction and quality of life.

摘要

子宫内膜异位症是一种影响育龄女性的慢性良性疾病,与盆腔疼痛和生育力低下相关,常对生活质量产生负面影响。我们召集了5名擅长子宫内膜异位症管理的妇科医生和2名精通数据管理及网站管理的信息技术顾问,创建了一个名为ENEAS(增强型子宫内膜异位症存档软件)的子宫内膜异位症数据库。这个处理系统允许用户存储、检索、比较和关联与不同意大利子宫内膜异位症中心联合收集的所有数据,其总体目标是为大量人群样本获取同质化数据。ENEAS是一个面向网络的应用程序,可基于任何可在服务器上本地安装的开源数据库,能够收集约700项数据,提供标准化和同质化数据用于比较和分析。ENEAS能够生成一份包含所有子宫内膜异位症管理数据的表单,该表单准确且适用于每位患者。ENEAS是一个有效且通用的网络应用程序,鼓励子宫内膜异位症领域的医疗服务提供者使用共同语言并共享数据,以规范医疗和手术治疗,主要益处是提高患者满意度和生活质量。

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