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小耳畸形手术中患者报告的结局指标。

Patient reported outcome measures in microtia surgery.

作者信息

Akter Farhana, Mennie Joanna C, Stewart Ken, Bulstrode Neil

机构信息

Great Ormond Street Hospital, London, United Kingdom.

Royal College of Surgeons of England, London, United Kingdom.

出版信息

J Plast Reconstr Aesthet Surg. 2017 Mar;70(3):416-424. doi: 10.1016/j.bjps.2016.10.023. Epub 2016 Nov 23.

Abstract

BACKGROUND

Autologous ear reconstruction for microtia is a complex, multi-stage procedure. The success of the procedure is dependant on how the patient perceives the outcomes of surgery and their overall experience. Patient reported measures are therefore crucial to developing the technique and improving the patient journey.

AIM

The aim of this study was to use two reproducible patient reported outcome tools as an objective measure of microtia reconstructive surgery.

METHODS

A retrospective cohort study was performed at Great Ormond Street Hospital (GOSH), London and the Royal Hospital for Sick Children (RHSC), Edinburgh. Two questionnaires were posted to patients with congenital microtia who underwent an autologous ear reconstructive procedure. The first questionnaire - designed by the authors at Great Ormond Street Hospital - measured the patient's perspectives of: ear appearance, the individual aesthetic units and the donor site. The second questionnaire - created by the authors at the Royal Hospital for Sick Children - collected demographic information; and asked general questions regarding ear surgery including psychosocial considerations and satisfaction scores of individual aesthetic units.

RESULTS

The majority of patients were very satisfied with their reconstructed ear (83% at GOSH and 85% at RHSC). High patient satisfaction scores were reported for the lobe of ear and size of the ear. Low satisfaction scores were reported for the antitragus and projection of ear.

CONCLUSION

The measures used in this study provide an objective assessment of patient reported experience and outcome that in the future can be used as a means of targeted quality improvement and to benchmark care nationally.

摘要

背景

先天性小耳畸形的自体耳再造是一个复杂的多阶段手术。该手术的成功取决于患者对手术结果的感知以及他们的整体体验。因此,患者报告的指标对于技术的发展和改善患者就医过程至关重要。

目的

本研究的目的是使用两种可重复的患者报告结局工具作为小耳畸形重建手术的客观衡量标准。

方法

在伦敦的大奥蒙德街医院(GOSH)和爱丁堡的皇家儿童医院(RHSC)进行了一项回顾性队列研究。向接受自体耳重建手术的先天性小耳畸形患者发送了两份问卷。第一份问卷由大奥蒙德街医院的作者设计,测量患者对耳部外观、各个美学单元和供区的看法。第二份问卷由皇家儿童医院的作者创建,收集人口统计学信息;并询问有关耳部手术的一般问题,包括社会心理因素以及各个美学单元的满意度评分。

结果

大多数患者对再造耳非常满意(GOSH为83%,RHSC为85%)。耳部耳垂和大小的患者满意度得分较高。对耳屏和耳部突出度的满意度得分较低。

结论

本研究中使用的指标为患者报告的经验和结果提供了客观评估,未来可作为有针对性的质量改进手段,并在全国范围内作为护理基准。

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