Donovan T J, Reddihough D S, Court J M, Doyle L W
Royal Women's Hospital, Melbourne.
Dev Med Child Neurol. 1989 Aug;31(4):489-93.
This study examined the use of and need for written educational material by the parents of 41 children with cerebral palsy, aged between five and 63 months. After their initial counselling, the majority felt that they needed written information. The parents of 31 children attempted to find suitable books or pamphlets, but in 13 cases they failed to do so or found the material unsatisfactory. A significant association was found between reading material which the parents found satisfactory and their knowledge about the basic features of cerebral palsy.
本研究调查了41名年龄在5至63个月之间的脑瘫患儿家长对书面教育材料的使用情况和需求。在接受初次咨询后，大多数家长认为他们需要书面信息。31名患儿的家长试图寻找合适的书籍或宣传册，但其中13名家长未能找到或认为材料不尽人意。研究发现，家长认为满意的阅读材料与他们对脑瘫基本特征的了解之间存在显著关联。
