Afonso Selene Beviláqua Chaves, Minayo Maria Cecília de Souza
Setor de Psicologia Médica, Instituto Nacional da Saúde da Criança, da Mulher e do Adolescente Fernandes Figueira, Fiocruz. Av. Rui Barbosa 716, Flamengo. 22250-020 Rio de Janeiro RJ Brasil.
Departamento de Estudos sobre Violência e Saúde Jorge Careli(Claves), Escola Nacional de Saúde Pública, Fiocruz. Rio de Janeiro RJ Brasil.
Cien Saude Colet. 2017 Jan;22(1):53-62. doi: 10.1590/1413-81232017221.14592016.
We present a study about the relations between pediatric oncological haematologists, mothers, and children in sharing bad news (BN) in a public hospital in Rio de Janeiro. The text emphasizes the intertwining of technique and emotions for the treatment of children with diagnoses in which the fatal outcome is always a probability. We used a qualitative approach, privileging participant observation and open interviews with oncologists (at this service all professionals were female) and mothers. We sought to understand the importance of communication which includes expressions and control of emotions; bioethical issues that require sensitivity, serenity, and truth about approaching the end of life; and how the professionals balance proximity to children and families and objectivity in their activity. The main results showed: intense exchanges on BN among professionals; relapse of children who were evolving positively as the most difficult news; constant update of BN facing terminally ill children; quality of communication influencing the treatment; professionals permanently balancing between closeness and distance from patients and evidence of the their irreplaceable role to secure the family and the child.
我们展示了一项关于里约热内卢一家公立医院中儿科肿瘤血液科医生、母亲和儿童在分享坏消息(BN)方面关系的研究。本文强调了在治疗患有致命结局始终存在可能性诊断的儿童时,技术与情感的交织。我们采用了定性研究方法,优先进行参与观察,并对肿瘤学家(该科室所有专业人员均为女性)和母亲进行开放式访谈。我们试图理解沟通的重要性,包括情感的表达与控制;涉及临终关怀时需要敏感性、平静和真实的生物伦理问题;以及专业人员如何在与儿童和家庭的亲近与工作中的客观性之间取得平衡。主要结果表明:专业人员之间就坏消息进行了激烈交流;病情正好转的儿童复发是最难传达的消息;面对绝症儿童时坏消息不断更新;沟通质量影响治疗;专业人员始终在与患者的亲近与距离之间保持平衡,并且证明了他们在保障家庭和儿童方面不可替代的作用。