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国际腭裂治疗任务后患者随访的可持续模式:概念验证

A Sustainable Model for Patient follow-up following an International Cleft Mission: A Proof of Concept.

作者信息

Wes Ari M, Paul Nadine, Gerety Patrick A, Folsom Nancy, Swanson Jordan, Taylor Jesse A, Weinstein Mark H

出版信息

Cleft Palate Craniofac J. 2018 Aug;55(7):977-982. doi: 10.1597/16-159. Epub 2018 Feb 22.

DOI:10.1597/16-159
PMID:28085514
Abstract

PURPOSE

Patient follow-up after cleft missions is imperative if we are to critically assess the quality of care provided in these settings. The adoption of mobile telephones among disadvantaged families abroad may enable such an undertaking in a cost-effective manner. This project aimed to assess the efficacy of cellular phone-based follow-up in a developing country following a cleft mission to Thailand.

METHODS

Changing Children's Lives Inc. performed a cleft surgical mission to Udon Thani, Thailand, in January 2013. Telephone numbers collected at that time were used to survey the patients or their parents 1.5 years postoperatively.

RESULTS

Of the 56 patients who underwent cleft lip and/or palate surgery during the mission, more than 50% ( n = 30, 54%) were reachable by telephone; all chose to participate in the study. The cost for families was U.S. $124.92 (56.15); 26 families (87%) believed their money was well spent. Follow-up care was received by 22 (73%) patients, and all but one family ( n = 29, 97%) felt that their child received all of the medical care and support required. All families ( N = 30) would recommend similar cleft care to a friend. Of the patients younger than 18 years of age ( n = 24, 80%), 20 (80%) families found their child more comfortable interacting with peers, more comfortable interacting with adults, and more confident postoperatively.

CONCLUSION

In one month, a survey response rate of more than 50% was obtained by leveraging the increased adoption of mobile phones in rural settings. Nearly all patients/families treated during the cleft mission were satisfied with the care that they received.

摘要

目的

如果我们要严格评估在这些环境中提供的护理质量,腭裂任务后的患者随访至关重要。国外贫困家庭对移动电话的采用可能使这样的工作以具有成本效益的方式进行。本项目旨在评估在泰国进行腭裂任务后,基于手机的随访在一个发展中国家的效果。

方法

“改变儿童生活”组织于2013年1月在泰国乌隆他尼开展了一次腭裂手术任务。当时收集的电话号码用于在术后1.5年对患者或其父母进行调查。

结果

在任务期间接受唇裂和/或腭裂手术的56名患者中,超过50%(n = 30,54%)可以通过电话联系到;所有人都选择参与研究。家庭花费为124.92美元(56.15泰铢);26个家庭(87%)认为他们的钱花得值。22名(73%)患者接受了后续护理,除了一个家庭(n = 29,97%)外,所有家庭都觉得他们的孩子得到了所需的所有医疗护理和支持。所有家庭(N = 30)都会向朋友推荐类似的腭裂护理。在18岁以下的患者中(n = 24,80%),20个(80%)家庭发现他们的孩子术后与同龄人互动更自如,与成年人互动更自如,也更自信。

结论

通过利用农村地区手机使用率的提高,在一个月内获得了超过50%的调查回复率。几乎所有在腭裂任务期间接受治疗的患者/家庭对他们所接受的护理都很满意。

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