VU University Medical Centre (VUmc), The Netherlands.
University of Oslo, Norway.
Nurs Ethics. 2018 Dec;25(8):1017-1029. doi: 10.1177/0969733016687154. Epub 2017 Jan 18.
: Living with a renal disease often reduces quality of life because of the stress it entails. No attention has been paid to the moral challenges of living with renal disease.
: To explore the moral challenges of living with a renal disease.
: A case study based on qualitative research. We used Walker's ethical framework combined with narrative ethics to analyse how negotiating care responsibilities lead to a new perspective on moral issues.
: One case was chosen from 20 qualitative interviews with renal patients in the Netherlands.
: Several actions have been taken to ensure the informed consent, privacy, anonymity and confidentiality of the patient in this article. More details are offered in this article. The study has been conducted in line with the recommendations of the Medical Ethical Committee of the VU Medical Center.
: A renal disease can force people to change their identity, relationships, values and responsibilities. The case study illustrates the moral challenges confronting renal patients.
:: Moral issues can be raised by the changes to identities, relationships, values and responsibilities caused by renal disease. Support services for renal patients and their relatives should pay more attention to these issues in order to promote self-management.
由于肾脏疾病带来的压力，患者的生活质量往往会受到影响。但目前还没有人关注肾脏疾病患者在生活中所面临的道德挑战。
探讨肾脏疾病患者在生活中所面临的道德挑战。
基于定性研究的案例研究。我们使用沃克的伦理框架结合叙事伦理分析了如何协商护理责任，从而对道德问题产生了新的认识。
从荷兰的 20 名肾脏患者的定性访谈中选择了一个案例。
本文采取了多项措施，以确保患者在知情同意、隐私、匿名和保密方面的权益。本文提供了更多详细信息。本研究符合 VU 医疗中心医学伦理委员会的建议。
肾脏疾病可能迫使人们改变自己的身份、人际关系、价值观和责任。该案例研究说明了肾脏患者所面临的道德挑战。
肾脏疾病引起的身份、人际关系、价值观和责任的变化可能引发道德问题。肾脏患者及其亲属的支持服务应该更加关注这些问题，以促进自我管理。
