Chrisco Lori, Travers Debbie, Grant Ernest J
From the *North Carolina Jaycee Burn Center, The University of North Carolina at Chapel Hill; and †School of Nursing, The University of North Carolina at Chapel Hill.
J Burn Care Res. 2017 Jul/Aug;38(4):e765-e771. doi: 10.1097/BCR.0000000000000483.
High-quality burn registries can facilitate best practices in burn treatment, patient education, and research. A new burn registry was designed and implemented at the North Carolina Jaycee Burn Center in June 2013. The primary goals for the design of the new North Carolina (NC) burn registry were to improve reporting to the American Burn Association's National Burn Repository while maintaining current functionality and preserving previously collected data. The objective of this evaluation was to review the literature for best practices in designing a disease registry, benchmark the design of the NC burn registry with the best practices identified in the literature, and compare data quality before and after implementation of the new NC burn registry. The NC burn registry was evaluated using six measurable elements identified from essential indicators of the Agency for Healthcare Research and Quality user's guide for design, implementation, analysis, interpretation, and quality evaluation of registries. These elements were achieving objectives, using literature to inform the choice of data elements, improving completeness of information, employing consistency checks, providing clear, operational definitions of outcomes and other data elements, and minimizing active data collection. Five of the six chosen essential elements were found to have been met during the evaluation of the new NC burn registry. One essential element, improving completeness of information, had mixed results. The new NC burn registry improved reporting to the National Burn Repository while maintaining current functionality and preserving previously collected data.
高质量的烧伤登记系统有助于在烧伤治疗、患者教育和研究方面推行最佳实践。2013年6月，北卡罗来纳州杰西青年烧伤中心设计并实施了一个新的烧伤登记系统。新的北卡罗来纳州（NC）烧伤登记系统设计的主要目标是在保持现有功能和保留先前收集的数据的同时，改进向美国烧伤协会国家烧伤资料库的报告。本次评估的目的是查阅有关疾病登记系统设计最佳实践的文献，将NC烧伤登记系统的设计与文献中确定的最佳实践进行对比，并比较新的NC烧伤登记系统实施前后的数据质量。使用从医疗保健研究与质量局登记系统设计、实施、分析、解释和质量评估用户指南的基本指标中确定的六个可衡量要素对NC烧伤登记系统进行评估。这些要素包括实现目标、利用文献为数据要素的选择提供依据、提高信息完整性、采用一致性检查、为结果和其他数据要素提供清晰的操作定义，以及尽量减少主动数据收集。在对新的NC烧伤登记系统的评估中，发现六个选定的基本要素中有五个得到了满足。一个基本要素，即提高信息完整性，结果好坏参半。新的NC烧伤登记系统在保持现有功能和保留先前收集的数据的同时，改进了向国家烧伤资料库的报告。
