Chen Teresa, Grau Carmen, Suprun Maria, Silverberg Nanette B
Mount Sinai St. Luke's-Roosevelt Hospital and Beth Israel Medical Centers of the Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Icahn School of Medicine at Mount Sinai, New York, USA.
Cutis. 2016 Dec;98(6):385-388.
Vitiligo is a loss of pigment occurring in approximately 0.4% to 2% of the worldwide population. The aim of this study was to determine and characterize barriers to access of care in US patients with vitiligo. An Internet-based, deidentified survey consisting of 82 questions about topics including demographics, recommendations for care, and/or barriers to receiving recommended care was designed and distributed to member participants in an online vitiligo support community consisting of patients (and parents/guardians of adolescents). Results indicated that treatment cost, relationships, work schedule, school schedule, number of sites affected, and female sex may be barriers to receiving prescribed care in some patients with vitiligo. Exploration of mechanisms by which these barriers can be reduced in the medical care of vitiligo may allow more patients to successfully receive treatment.
白癜风是一种色素脱失疾病，全球约0.4%至2%的人口受其影响。本研究旨在确定并描述美国白癜风患者获得护理的障碍。我们设计了一项基于互联网的匿名调查问卷，包含82个问题，涉及人口统计学、护理建议以及接受推荐护理的障碍等主题，并将其分发给一个由患者（以及青少年的父母/监护人）组成的在线白癜风支持社区的成员参与者。结果表明，治疗费用、人际关系、工作时间表、学校时间表、受累部位数量以及女性性别可能是一些白癜风患者接受规定护理的障碍。探索在白癜风医疗护理中减少这些障碍的机制，可能会使更多患者成功接受治疗。
