Suppr超能文献

白癜风患者在获得医疗服务方面存在障碍。

Vitiligo patients experience barriers in accessing care.

作者信息

Chen Teresa, Grau Carmen, Suprun Maria, Silverberg Nanette B

机构信息

Mount Sinai St. Luke's-Roosevelt Hospital and Beth Israel Medical Centers of the Icahn School of Medicine at Mount Sinai, New York, New York, USA.

Icahn School of Medicine at Mount Sinai, New York, USA.

出版信息

Cutis. 2016 Dec;98(6):385-388.

Abstract

Vitiligo is a loss of pigment occurring in approximately 0.4% to 2% of the worldwide population. The aim of this study was to determine and characterize barriers to access of care in US patients with vitiligo. An Internet-based, deidentified survey consisting of 82 questions about topics including demographics, recommendations for care, and/or barriers to receiving recommended care was designed and distributed to member participants in an online vitiligo support community consisting of patients (and parents/guardians of adolescents). Results indicated that treatment cost, relationships, work schedule, school schedule, number of sites affected, and female sex may be barriers to receiving prescribed care in some patients with vitiligo. Exploration of mechanisms by which these barriers can be reduced in the medical care of vitiligo may allow more patients to successfully receive treatment.

摘要

白癜风是一种色素脱失疾病,全球约0.4%至2%的人口受其影响。本研究旨在确定并描述美国白癜风患者获得护理的障碍。我们设计了一项基于互联网的匿名调查问卷,包含82个问题,涉及人口统计学、护理建议以及接受推荐护理的障碍等主题,并将其分发给一个由患者(以及青少年的父母/监护人)组成的在线白癜风支持社区的成员参与者。结果表明,治疗费用、人际关系、工作时间表、学校时间表、受累部位数量以及女性性别可能是一些白癜风患者接受规定护理的障碍。探索在白癜风医疗护理中减少这些障碍的机制,可能会使更多患者成功接受治疗。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验