Anderson James, Williams Laura, Karmali Amir, Beesley Lori, Tanel Nadia, Doyle-Thomas Krissy, Sheps Gideon, Chau Tom
a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
b Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
Disabil Rehabil. 2018 Apr;40(7):859-863. doi: 10.1080/09638288.2016.1276973. Epub 2017 Jan 23.
To describe the development and implementation of an organizational framework for client and family-centered research.
Case report.
While patient-centered care is now well established, patient-centered research remains underdeveloped. This is particularly true at the organizational level (e.g., hospital based research institutes). In this paper we describe the development of an organizational framework for client and family centered research at Holland Bloorview Kids Rehabilitation Hospital in Toronto, Canada.
It is our hope that, by sharing our framework other research institutions can learn from our experience and develop their own research patient/client/family engagement programs. Implications for rehabilitation Family engagement in rehabilitation research •Rehabilitation research is crucial to the development and improvement of rehabilitative care. •The relevance, appropriateness, and accountability of research to patients, clients and families could be improved. •Engaging clients and families as partners in all aspects of the research process is one way to address this problem. •In this paper, we describe a framework for engaging clients and families in research at the organizational level.
描述以客户和家庭为中心的研究的组织框架的开发与实施。
病例报告。
虽然以患者为中心的护理现已得到充分确立，但以患者为中心的研究仍未得到充分发展。在组织层面（如医院附属研究机构）尤其如此。在本文中，我们描述了加拿大多伦多荷兰布鲁尔维尤儿童康复医院以客户和家庭为中心的研究的组织框架的开发情况。
我们希望，通过分享我们的框架，其他研究机构能够借鉴我们的经验，制定自己的研究患者/客户/家庭参与计划。对康复的启示 家庭参与康复研究 •康复研究对于康复护理的发展和改进至关重要。 •研究对患者、客户和家庭的相关性、适当性和问责性可以得到提高。 •让客户和家庭在研究过程的各个方面作为合作伙伴参与是解决这一问题的一种方法。 •在本文中，我们描述了一个在组织层面让客户和家庭参与研究的框架。
