沙特生物样本库中的研究结果返还：一项探索性调查
Return of Research Results in the Saudi Biobank: An Exploratory Survey.
作者信息
Alahmad Ghiath, Dierickx Kris
机构信息
1 King Abdullah International Medical Research Center , King Abdulaziz Medical City, Riyadh, Saudi Arabia .
2 Faculty of Medicine, Centre for Biomedical Ethics and Law , Leuven, Belgium .
出版信息
Genet Test Mol Biomarkers. 2017 Mar;21(3):166-170. doi: 10.1089/gtmb.2016.0396. Epub 2017 Jan 24.
BACKGROUND AND AIMS
There are many research biobanks in the world, including a small number in the Middle East. The Saudi biobank, one of the newly established biobanks, has just started to collect data and samples in 2016.
METHODS
A survey was conducted to assess the opinions of stakeholders regarding the return of individual research results. A total of 180 adults from three different groups (researchers, physicians, and laypeople) participated in this cross-sectional study.
RESULTS
There was strong agreement among all respondents that the biobank has the duty and donors have the right to be provided with important results that may have direct or indirect benefits. Moreover, there was strong support for the view that donors have the right to refuse to receive any research results.
CONCLUSIONS
These results are compatible with many other studies and are in line with the governance of the Saudi biobank.
背景与目的
全球有许多研究生物样本库，中东地区也有少数。沙特生物样本库是新建立的生物样本库之一，于2016年才开始收集数据和样本。
方法
开展一项调查，以评估利益相关者对返还个人研究结果的看法。来自三个不同群体（研究人员、医生和普通民众）的180名成年人参与了这项横断面研究。
结果
所有受访者一致强烈认为，生物样本库有责任，捐赠者有权获得可能有直接或间接益处的重要结果。此外，对于捐赠者有权拒绝接收任何研究结果这一观点也有强烈支持。
结论
这些结果与许多其他研究一致，符合沙特生物样本库的管理规定。
Zotero 插件