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使用SF-36v2量表评估小儿反常性声带运动的生活质量。

Measuring Quality of Life in Pediatric Paradoxical Vocal Fold Motion Using the SF-36v2.

作者信息

Liao Kershena S, Kwak Paul E, Hewitt Hazel, Hollas Sarah, Ongkasuwan Julina

机构信息

Baylor College of Medicine, Houston, Texas.

Division of Laryngeal Surgery, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts.

出版信息

J Voice. 2017 Jul;31(4):518.e1-518.e5. doi: 10.1016/j.jvoice.2016.12.020. Epub 2017 Jan 30.

Abstract

OBJECTIVES

Paradoxical vocal fold motion (PVFM) consists of intermittent adduction of the vocal folds during inspiration, resulting in stridor and worsened by anxiety and stress. The purpose of this study was to assess the impact of PVFM on quality of life in our pediatric patient population.

STUDY DESIGN

This is a prospective, descriptive survey study.

METHODS

Thirty-nine consecutive patients (ages 12-17 years) presenting with a PVFM diagnosis for respiratory retraining sessions with speech-language pathology were recruited. Patients completed a brief demographic questionnaire and the Short Form 36, version 2, a validated tool for measuring health-related quality of life.

RESULTS

There were 31 (79%) girls and 8 (21%) boys with a mean age of 15.5 years. Subjects reported regular participation in competitive extracurricular activities, including track or cross country (30.8%), swimming (17.9%), and cheerleading or dancing (15.4%). Of the patients in the study, 46.2% were straight-A students. On the SF-36 (population averages normalized to a score of 50), the general health of patients with PVFM was better than that of the general population (53.27); however, their physical health limited their role activities more severely (42.82). In addition, a greater proportion of the group with PVFM was at risk for first-stage depression screening when compared with the general population (28% versus 18%).

CONCLUSIONS

We demonstrate a measurable detrimental impact of PVFM on health-related quality of life. This is consistent with previously published literature showing a preponderance of females with PVFM, most of whom are high achievers academically and athletically.

摘要

目的

矛盾性声带运动(PVFM)表现为吸气时声带间歇性内收,导致喘鸣,并因焦虑和压力而加重。本研究的目的是评估PVFM对我们儿科患者群体生活质量的影响。

研究设计

这是一项前瞻性描述性调查研究。

方法

招募了39例连续诊断为PVFM并接受言语病理学呼吸再训练的患者(年龄12 - 17岁)。患者完成了一份简短的人口统计学调查问卷以及简短健康调查问卷第2版(SF - 36 v2),这是一种经过验证的用于测量健康相关生活质量的工具。

结果

有31名(79%)女孩和8名(21%)男孩,平均年龄为15.5岁。受试者报告经常参加竞技性课外活动,包括田径或越野(30.8%)、游泳(17.9%)以及啦啦队或舞蹈(15.4%)。在研究患者中,46.2%是全优学生。在SF - 36量表(总体平均值标准化为50分)上,PVFM患者的总体健康状况优于一般人群(53.27);然而,他们的身体健康对其角色活动的限制更为严重(42.82)。此外,与一般人群相比,PVFM组中更多比例的人处于一级抑郁筛查风险中(28%对18%)。

结论

我们证明了PVFM对健康相关生活质量有可测量的有害影响。这与先前发表的文献一致,文献显示PVFM患者中女性占多数,其中大多数在学业和体育方面表现优异。

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