Ar Yagmur, Karanci A Nuray
Middle East Technical University, Turkey.
Dementia (London). 2019 Apr;18(3):882-902. doi: 10.1177/1471301217693400. Epub 2017 Feb 15.
There is substantial evidence suggesting that Western and non-Western caregivers of patients with Alzheimer's disease have different caregiving experiences depending on the cultural values they adopt. Although family-centered constructs such as familism and filial piety have taken some attention, there is still a paucity of research on how cultural values and norms shape caregiving appraisals, coping strategies, and formal service use specifically in Eastern-oriented contexts. The aim of this study was to investigate Turkish adult children caregivers' perceptions of Alzheimer's disease and caregiving experience. Researchers conducted in-depth interviews with 20 primary caregivers and analyzed data with interpretative phenomenological analysis. First, most caregivers viewed family disharmony as the main cause of the disease. Second, although burden is evident in their accounts, caregivers reported positive changes during their caregiving experiences, as well. Third, caregivers employ religious/fatalistic coping and they benefit from social support during their caregiving experiences. Forth, most caregivers opposed to nursing home placement because they view it as a morally improper act; they are afraid of neighborhood pressure; they perceive caregiving as a child's responsibility; they do not want their children to do so; and they do not trust conditions of care facilities in Turkey. Findings indicated that Eastern norms and values might have differential impacts on Alzheimer's disease caregiving outcomes. Hence, we invite mental health professionals to integrate culturally sensitive aspects into the possible intervention programs targeting Alzheimer's disease caregivers from non-Western contexts.
有大量证据表明，阿尔茨海默病患者的西方和非西方照料者，因其所秉持的文化价值观不同，有着不同的照料经历。尽管诸如家族主义和孝道等以家庭为中心的观念已受到一定关注，但关于文化价值观和规范如何具体在东方背景下塑造照料评估、应对策略及正式服务使用的研究仍很匮乏。本研究的目的是调查土耳其成年子女照料者对阿尔茨海默病及照料经历的看法。研究人员对20名主要照料者进行了深入访谈，并采用解释性现象学分析方法对数据进行了分析。首先，大多数照料者认为家庭不和是该病的主要病因。其次，尽管他们的叙述中明显存在负担，但照料者也报告了照料经历中的积极变化。第三，照料者采用宗教/宿命论应对方式，且在照料经历中受益于社会支持。第四，大多数照料者反对将患者安置在养老院，因为他们认为这是一种道德上不当的行为；他们害怕邻里压力；他们将照料视为子女的责任；他们不希望自己的子女这样做；而且他们不信任土耳其护理机构的条件。研究结果表明，东方的规范和价值观可能对阿尔茨海默病的照料结果产生不同影响。因此，我们邀请心理健康专业人员将文化敏感因素纳入针对非西方背景下阿尔茨海默病照料者的可能干预项目中。
