Department of Urology, The First Affiliated Hospital of Chongqing Medical University, Chongqing, China.
Department of Gynecology, The First Affiliated Hospital of Chongqing Medical University, Chongqing, China.
Front Public Health. 2022 Sep 14;10:985391. doi: 10.3389/fpubh.2022.985391. eCollection 2022.
PURPOSE: The increasing incidence of dementia and home-based care exposes family caregivers to a variety of challenges as they endure strong stressors underlying the caregiver role. Despite growing publications on positive aspects of caregiving in dementia, few studies have identified the extent, nature, and gaps in the existing literature based on a holistic view. The aim was to identify key issues and a holistic view of literature regarding positive aspects of caregiving in dementia. METHODS: A scoping review was conducted underlying a five-stage framework by Arksey and O'Malley. Five databases, including PubMed, CINAHL, PsycINFO, Embase, and Web of Science, were searched, and references were listed accordingly. Data were extracted by two researchers, comprising article characteristics, forms of positive aspects of caregiving and measurements, theories, forms of dementia and family caregiver, and keywords. Descriptive statistics and narrative synthesis were performed to analyze data. Network analysis of keywords and authors was conducted using VOSviewer software. Word cloud analysis of titles was examined by NVivo. RESULTS: The review included 230 articles, most of which have been published in the last decade (62.61%). Most articles (40.00%) were contributed by the United States. Cross-sectional studies (41.30%) ranked first, followed by qualitative studies (13.48%). Over a quarter of the literature (28.26%) focused on Alzheimer's care, and nearly 90% included all forms of family caregivers. The Positive Aspects of Caregiving Scale and stress coping theory were most frequently cited. Four clusters dominated by Casey D, Quinn C, Joling KJ, and Teahan A were identified in the network of co-authorship. Six themes were identified: current situations of caregiver experiences, antecedents, consequences, measurement development, effects of interventions, and the concept of positive aspects of caregiving. These were in line with network analysis of keywords and word cloud analysis of titles. CONCLUSIONS: Positive aspects of caregiving in dementia have been widely concerned, but most of them are based on the theory of the negative stress process and are limited to current situations and influencing factors. Building theories focus on the positive aspects of caregiving, subsequently developing a comprehensive measurement and effective interventions, should be further studied.
目的：痴呆症发病率的上升和家庭护理使家庭护理人员面临各种挑战，因为他们承受着作为护理人员角色的强烈压力源。尽管关于痴呆症护理积极方面的出版物越来越多，但很少有研究从整体视角确定现有文献的范围、性质和差距。目的是确定痴呆症护理积极方面的关键问题和整体文献观点。
方法：采用 Arksey 和 O'Malley 的五阶段框架进行了范围综述。在 PubMed、CINAHL、PsycINFO、Embase 和 Web of Science 五个数据库中进行了搜索，并相应列出了参考文献。由两名研究人员提取数据，包括文章特征、护理积极方面的形式和测量、理论、痴呆症和家庭护理人员的形式以及关键词。使用描述性统计和叙述性综合分析数据。使用 VOSviewer 软件对关键词和作者进行网络分析。使用 NVivo 检查标题的词云分析。
结果：综述共纳入 230 篇文章，其中大部分发表于过去十年（62.61%）。40.00%的文章来自美国。横断面研究（41.30%）排名第一，其次是定性研究（13.48%）。超过四分之一的文献（28.26%）关注阿尔茨海默病护理，近 90%的文献包含所有形式的家庭护理人员。引用最多的是积极护理量表和压力应对理论。合作作者网络中确定了以 Casey D、Quinn C、Joling KJ 和 Teahan A 为主导的四个聚类。确定了六个主题：护理人员体验的现状、前因、后果、测量开发、干预效果和积极护理观点的概念。这些与关键词网络分析和标题词云分析一致。
结论：痴呆症护理的积极方面已经引起了广泛关注，但大多数都是基于消极压力过程理论，仅限于现状和影响因素。进一步研究应侧重于建立关注护理积极方面的理论，随后开发全面的测量和有效的干预措施。
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