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使用辅助沟通系统(AAC)的后天性疾病成年患者对社交媒体的使用:研究中的当前差距与考量因素

The use of social media by adults with acquired conditions who use AAC: current gaps and considerations in research.

作者信息

Paterson Helen L

机构信息

a Royal Hospital for Neuro-disability , London , UK.

出版信息

Augment Altern Commun. 2017 Mar;33(1):23-31. doi: 10.1080/07434618.2016.1275789.

Abstract

The global growth and development of social media has had a positive impact on many individuals who use augmentative and alternative communication (AAC), who use it to communicate and connect with others. Research evidence into the use of social media by adults with acquired conditions who use AAC is limited. These individuals are a heterogeneous population, who can present with a range of linguistic, cognitive and physical needs, some of which progress rapidly, making accessing social media a challenge. These issues warrant research focusing on developing interventions to support the use of social media and the impact of these interventions. For individuals with acquired conditions who have previously used social media and for those who are new to the experience, social media can offer a vital connection to friends, family and health professionals. This paper examines current gaps in knowledge in this area in the field of AAC and proposes potential methodologies for future research. These include combining qualitative and quantitative methodologies (e.g., analysis of online interactions and observational data) that would be useful tools for data collection in an under-researched field.

摘要

社交媒体在全球范围内的发展对许多使用辅助和替代沟通方式(AAC)的人产生了积极影响,他们借助这种方式与他人进行交流和建立联系。关于患有后天性疾病且使用AAC的成年人使用社交媒体的研究证据有限。这些个体构成了一个异质群体,他们可能存在一系列语言、认知和身体方面的需求,其中一些需求变化迅速,这使得使用社交媒体成为一项挑战。这些问题值得开展研究,重点是开发支持使用社交媒体的干预措施以及这些干预措施的影响。对于之前使用过社交媒体的患有后天性疾病的个体以及初次体验社交媒体的人而言,社交媒体可以为他们与朋友、家人和健康专业人员提供至关重要的联系。本文审视了AAC领域在这方面当前的知识空白,并提出了未来研究的潜在方法。这些方法包括结合定性和定量方法(例如,分析在线互动和观察数据),这将是在一个研究不足的领域中进行数据收集的有用工具。

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